dancer65 Posted February 11, 2015 Report Share Posted February 11, 2015 Hi every oneI am fairly new here and I have found this forum so helpful and comforting, so a big thank you to you all for sharing ! it is nice to know that some of the things I am experiencing are not in my head! It has taken many years to get diagnosed and I was beginning to think I was going mad!I have experience shoulder pain from between my shoulder blades up to the base of my skull for a long time which often progresses into a migraine, however this last week I keep being woken up with excruciating pain in my shoulders (deltoid muscle area) and across my collar bone. I can only describe it as though someone has put my shoulders in a vice. I have to get out of bed and move around for the pain to subside which takes about half an hour. I have over the last six months noticed considerable loss in arm strength, pins and needles in my arms and the veins pop in my hands which I know is common in POTS but this shoulder pain is new.Can anyone relate to this?Thank you in advance Quote Link to comment Share on other sites More sharing options...
angelloz Posted February 11, 2015 Report Share Posted February 11, 2015 I have shoulder pain in my right shoulder constantly to varying degrees. I use tiger balm patches to help with the pain. I try to keep the pain level down as it can cause my head pain to increase. Haven't seen a doctor about it as there is always so much to see a doctor about. Let me know if you learn anything about it. I think it would help my head pain to treat it but just guessing about that. Good luck! Quote Link to comment Share on other sites More sharing options...
dkd Posted February 11, 2015 Report Share Posted February 11, 2015 If it continues you should probably see a doctor. Could be a pinched nerve in your neck. I saw a neurologist and he ordered an MRI which showed degenerative discs and stenosis. I had horrible pain and am still left with numbness in two fingers. I should probably consult a surgeon but am terrified of surgery!Have you injured your neck recently? Been in a car accident. It could even be from sleeping in a weird position. I had no reason for it but just woke up one day in horrible pain. Best wishes! Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 12, 2015 Report Share Posted February 12, 2015 Count me in, but I do have chronic migraine and diagnosed cervical spine instability and EDS....so who knows what it is from. I also experience quite a bit of numbness in all 4 of my limbs. I am actually now being tested for hypercoagulability syndromes as we can't get a handle on my migraines or the positional numbness in the limbs. Quote Link to comment Share on other sites More sharing options...
dancer65 Posted February 12, 2015 Author Report Share Posted February 12, 2015 Thank you for your replies No I haven't done anything out of the ordinary to cause this.I have read about magnesium deficiency causing all sorts of symptons including headaches, muscle pain. I do make electrolyte drinks every day because of the water intake diluting the minerals so maybe I will try taking a supplement as well. I am really having a bad week, I had been feeling a bit better after my Dr doubled the Florinef dose, I know you all understand the frustration a downturn brings! Are we allowed to post links for info ?I have so much to learn so thank you for your imput Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 12, 2015 Report Share Posted February 12, 2015 Yes, you can post links to information. Quote Link to comment Share on other sites More sharing options...
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