griffism Posted January 15, 2015 Report Share Posted January 15, 2015 I was wondering if anyone on here has experienced a red, splotchy, flat rash over their entire body or at least most of it when they are finished with a shower? I always have this type of rash after i have taken a shower, but it usually goes away within just a few minutes. I was wondering if anyone has any ideas as to what it could be? My thoughts are that it could be a heat rash or an indication of a potential mast cell condition on top of the POTS. Stefanie Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted January 15, 2015 Report Share Posted January 15, 2015 I do at times. Mainly chest neck sometimes tummy and legs. Not sure why. It's not consistent Quote Link to comment Share on other sites More sharing options...
valiz Posted January 15, 2015 Report Share Posted January 15, 2015 I have the same thing a rash all over my body after a shower or bath. I would be very interested as well as to what is causing this in dysautonomia. Quote Link to comment Share on other sites More sharing options...
Mike Posted January 15, 2015 Report Share Posted January 15, 2015 I do very often. Usually on the upper half of my body. I also get it randomly throughout the day also, a lot of times people will ask me if I scratched myself on my face and/or neck. Quote Link to comment Share on other sites More sharing options...
xRobin Posted January 15, 2015 Report Share Posted January 15, 2015 I get one after showers and also when I'm out in the sun. I always thought it was the beta blocker (which can cause heat rashes) but it could be POTS too, I have no idea. Quote Link to comment Share on other sites More sharing options...
valiz Posted January 15, 2015 Report Share Posted January 15, 2015 I'm not on any beta blocker, and I have the rash. I thought it was the Midodrine but I'm off of that medication so I know it wasn't that either. Quote Link to comment Share on other sites More sharing options...
artluvr09 Posted January 16, 2015 Report Share Posted January 16, 2015 wow! I have something similar! I don't know if its the same but my mom and I have no idea what my rash is or not. I have had a rash starting in October and its still here in January and spreading. It starts out as a small flat either red or tan circle then the circle gets bigger and I keep getting other patches Most of them you can't see until after my shower and I get a lot more round patches. They don't itch but its weird. gets worse when im hot or after a shower. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted January 16, 2015 Report Share Posted January 16, 2015 Ooh yeah. Sun exposure too. No betablocker though Quote Link to comment Share on other sites More sharing options...
Dyspatient Posted January 16, 2015 Report Share Posted January 16, 2015 Yep. Just had them bad the other day. I get livid red patches on my chest and neck, sometimes they are itchy. I'm told they can be very sharply demarcated. I sometimes get them outside of a post shower context, like when I'm hot or under orthostatic stress for whatever reason (upright and talking too long, overheated, underhydrated). I've had coworkers point them out from across the room. After showers, I also have something that looks less livid, not itchy, but pink-red and splotchy on the upper, inner sides of my knees, extending a little up my thigh. This area is where I had a tendency to get a petechial rash for several months in a row some years back (a mystery what caused that, never did figure it out). I wonder if there's something up with the capillaries in that area. I'm not carrying a lot of extra weight, so I don't think it's that things are really rubbing together hard there. So that's it for my post shower red spots. I do have a fairly large number of contact allergies, although the few tests I've had for mast cell issues did not support that as a diagnosis. Quote Link to comment Share on other sites More sharing options...
smish Posted January 17, 2015 Report Share Posted January 17, 2015 Yep I do. Red blotches which feel hot to touch like sunburn does. They don't itch but they do feel very warm especially if I have clothing over them. I tend to get them more if I have a cold or at that time of the month. I always have them after a bath or shower though. Quote Link to comment Share on other sites More sharing options...
griffism Posted January 18, 2015 Author Report Share Posted January 18, 2015 Thanks for the responses! I am going to see a rheumatologist soon so that I can be tested for mast cell and for SLE. I will keep you guys posted on what I find out. It will be interesting to see if this phenomenon is something other than POTS. Stefanie Quote Link to comment Share on other sites More sharing options...
andybonse Posted January 21, 2015 Report Share Posted January 21, 2015 I get this when hot, after showers mainly chest and arms, maybe side of abdomen.I also get it if I sit without a top on and get quite cold.It's probably some sort of mast cell issue or vasoconstriction / dilation issues, probable options ? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 22, 2015 Report Share Posted January 22, 2015 Yes they are hot to touch - basically over dilated microvessels in the skin. I get this as well. Cause yet to be explained Quote Link to comment Share on other sites More sharing options...
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