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I feel like a lot of people stop coming here when they start feeling better, so I thought I'd pop in and maybe provide some hope at least for those with a similar diagnosis.

After being diagnosed (secondary POTS, venous insufficiency, possible adrenal insufficiency), I was just told to increase fluid and salt and wear compression stockings. Within a week of doing those things, I felt dramatically better. I haven't really tried going back to the gym yet though. A little nervous for that, but I'm at least able to get my chores done. I almost can't believe that just drinking more water/Gatorade has much this much of a difference. I still have bad days of course and times when I have to sit down for a minute or times when my heart is racing a little too much, but my doctor (Cleveland Clinic) told me not to let that get to me because that will just make it worse. I try to focus on what I can do to make the next day better. While POTS is certainly not caused by a negative attitude, I've been learning how much power a positive attitude can have.

I sincerely hope that all of you are able to find a way to manage your symptoms and live a life that makes you happy.

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So wonderful and encouraging to hear!! I wish you a steady progress, back to full health!!!

Just one question: You mentioned venous insufficiency - did I get you right that this condition is underlying your POTS?

I have a high risk for venous insufficiency from my maternal line, detectable back to my great-grandparents; no doc ever ever tested me for it, nor did the POTS docs mention a possible connection with POTS. But maybe....?

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I was not told specifically that venous insufficiency is the underlying mechanism. I don't have a whole lot of information about it either, but I know that it's been discussed before on these forums so you could try searching for it.

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I was not told specifically that venous insufficiency is the underlying mechanism. I don't have a whole lot of information about it either, but I know that it's been discussed before on these forums so you could try searching for it.

Ok, I see - so what kind of information did you get concerning your underlying cause? As you mentioned that you have secondary POTS.

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My neuro wants to check for adrenal insufficiency, but she also said that more testing wouldn't really change my treatment at this point. I have low blood volume because I wasn't drinking enough water, so I'm sure that is also a contributing factor.

Basically, we're going to see what happens with the lifestyle changes and if it isn't better by my next appointment, then we'll consider finding a cause.

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