seaboardbc Posted May 26, 2005 Report Share Posted May 26, 2005 I was wondering if anyone here has a confirmed diagnosis of mastocytosis. I have read a lot about it on-line and I would just like to know more about it from someone who actually has it. I was diagnosed with POTS almost 3 years ago. Then in February I found out that I have severe osteoporosis (I'm 44yrs and I haven't gone through menopause and the doctors don't think that it's drug induced). Shortly after that I was "unofficially" diagnosed with Meniere's disease after experiencing several episdoes of vertigo. Now I'm undergoing a series of tests to figure out what's causing my osteoporosis. My doctors suspect mastocystosis.Any firsthand input would be greatly appreciated.Thanks!Brenda Quote Link to comment Share on other sites More sharing options...
Miriam Poorman-Knox Posted May 28, 2005 Report Share Posted May 28, 2005 I have mastocytosis. Just give me a hairbrush or a tree. I take allegra and ativan, plus creams for it. I had premature mrnopause. I have osteoarthritis, but they aren't connected. This is truly one of the most annoying parts of this syndrome. It pops up EVERYWHERE, and it itches and itches. Luck Miriam Quote Link to comment Share on other sites More sharing options...
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