EGorman Posted August 7, 2014 Report Share Posted August 7, 2014 I'm really having a hard time finding any info on Dysautonomia. I recently was told I had Dysautonomia (but no more specific diagnosis). I went to a neuro and had a test called ANSAR, which showed in the summary (it prints specific ones based on your results) that I have "advanced autonomic dysfunction", and also that (according to what I read on the ANSAR company's test interpretation PDF) I probably have Paradoxical Parasympathetic Syndrome (PPS). The problem is that now I can't find a doctor who can help me find the specific issues and how to treat them. I thought the neurologist who's office I had the test in would help, but he ignored the test (even though I had suuuuuper high parasympathetic levels at abnormal spots) and decided to take me down a different path and just gave me medicine for migraines (just one of my many symptoms). I am not going back, as I have been down that road for many years, and I have no desire for guesswork and mis-diagnosis (such as my supposed "epilepsy". Really?). Anyone know what kind of doctor I should look for? I don't even have a primary care. Thanks! Quote Link to comment Share on other sites More sharing options...
corina Posted August 7, 2014 Report Share Posted August 7, 2014 Hi EGorman, welcome to the forum! I'm sorry to hear your doctor isn't willing to work with you. Have you checked out DINET's Physician list? Here's a link for you:http://www.dinet.org/index.php/physician-list Quote Link to comment Share on other sites More sharing options...
EGorman Posted August 7, 2014 Author Report Share Posted August 7, 2014 I just looked at the list and noticed there is a doctor in my city, so I will check it out. Is anyone familiar with the ANSAR test? Quote Link to comment Share on other sites More sharing options...
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