Gittel Posted May 24, 2005 Report Share Posted May 24, 2005 Hey every1,I just found this site when looking up POTS which according to the HORRIBLE tilt test and specialists etc etc I got. And until today I've never heard of it,but the whole thing kinda makes sence and they finaly found out what's wrong wif me after thousands of negative tests so I'm not mad after all lolWell n e thats heaps 2 much bout me............So what's this forum thing jst 4 ppl 2 talk n stuff??Hmm hope some1 replyies hehe oh bi the way my name's Gittel and i'm from Australia so yea :-D Quote Link to comment Share on other sites More sharing options...
mom4cem Posted May 24, 2005 Report Share Posted May 24, 2005 Welcome Gittel,I am also pretty new here, not diagnosed with POTS per se, but with Dysautonomia, I have most of the symptoms that are listed and it is tough finding someone to treat this syndrome! Have your Dr.s come up with a treatment plan for you?This is a great site full of supportive people who give support, lend ideas/suggestions, are just plain there when you need them. Welcome again. Quote Link to comment Share on other sites More sharing options...
Ernie Posted May 24, 2005 Report Share Posted May 24, 2005 Hi Gittel;Welcome aboard.My name is Ernie and I live in Canada.Ernie Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 24, 2005 Report Share Posted May 24, 2005 Welcome. This forum is for people to discuss and ask questions about their autonomic problems. If you have not already read through the main forum, I strongly suggest reading up as it will help you to understand what's going on with your body.http://www.dinet.orgalso, check out the pinned topic called "help yourself"http://dinet.ipbhost.com/index.php?showtopic=1954Lastly, you might consider downloading a free book on dysautonomias, including POTS, which is available on NDRF's website as a PDF download.http://dinet.ipbhost.com/index.php?showtopic=1954Again, welcome to the forum and I hope you find answers and help here.Nina Quote Link to comment Share on other sites More sharing options...
morgan617 Posted May 24, 2005 Report Share Posted May 24, 2005 G'day Gittel and welcome to the forum. This is a wonderful haven in the crazy world of POTS. You will find people here very supportive and lots of helpful links to answer your questions. Again, welcome morgan Quote Link to comment Share on other sites More sharing options...
deeplyset Posted May 24, 2005 Report Share Posted May 24, 2005 Hey Gittel,I just joined too! My doctors are looking into POTS as a diagnostic possiblity for me also... I won't know for sure till June though! Everyone has been really helpful, supportive and knowledgable so far for me I'm sure you'll love it. Quote Link to comment Share on other sites More sharing options...
Gena Posted May 24, 2005 Report Share Posted May 24, 2005 Welcome Gittel. All of the links that Nina provided you are a great resource of info. If you still have questions (and most of us usually do) feel free to post them. Make sure you read up on the basic things you can do to ease your symptoms, such as drink plenty of water, use celtic sea salt or salt tabs, balance your electrolytes with Gatorade or other similar drink, try compression hose, stay away from alchohol and sugars, eat small meals, etc.You will find so many helpful and supportive people here. Glad you found us. Gena Quote Link to comment Share on other sites More sharing options...
steph37822 Posted May 24, 2005 Report Share Posted May 24, 2005 oops Quote Link to comment Share on other sites More sharing options...
EarthMother Posted May 25, 2005 Report Share Posted May 25, 2005 Welcome Gittel!For me this site has helped to fill in the blanks after the Doctor's proclimation "You have POTS ... I have no idea what to do with you." Hope you find it helpful and will share your story and success with us down the road.Good luck in your own healing journey.EM Quote Link to comment Share on other sites More sharing options...
Gittel Posted May 25, 2005 Author Report Share Posted May 25, 2005 WOW thanks every1 for all the messages :-)So how old r ppl roughly on this site??????????/ Quote Link to comment Share on other sites More sharing options...
Merrill Posted May 25, 2005 Report Share Posted May 25, 2005 It took me a while to fill in all the missing letters, Gittel, to figure out your question! Many of us are old enough to still spell "people" with all its vowels! I think we range from about 18 to about 60. That's a guess. There are a good number of people here who do not speak English as a first language. Quote Link to comment Share on other sites More sharing options...
Eillyre Posted May 26, 2005 Report Share Posted May 26, 2005 Just wanted to add my little welcome! Hope you'll find the support and suggestions that you need! I think Merrill's guestimate on our age range is pretty close -- I'm 21. What activity level are you at right now? Are you able to attend school or work?Welcome again!Angela Quote Link to comment Share on other sites More sharing options...
kristinp29 Posted May 29, 2005 Report Share Posted May 29, 2005 Hi Gittel,Welcome to the forum! I think that you'll find lots of help here--and I know that you'll find lots of friendly people. I was in my freshman year of high school when I got POTS in September 2001. I was homeschooled in my sophomore and junior years; I was homebound because I was so ill. It took until August 2003 before I was diagnosed. Now, I'm doing so well and am getting my life back. I just completed my second semester of college and started my first job this week. I'll be working 20 hours/week and will be going away to college in the fall.Although medications work for some people, I found that my body couldn't tolerate them. I take nutritional supplements; my mom is a nutritionist, so it has been wonderful having her expertise on hand. My symptoms have ranged from a high heart rate and low blood pressure to tremors and numbness, to episodes of paralysis. Email me if you want to talk!Kristin Quote Link to comment Share on other sites More sharing options...
persephone Posted May 29, 2005 Report Share Posted May 29, 2005 Hi Gittel! whereabouts in Oz are ya? I've always wanted to go! I'm 23, and I'm Scottish. Quote Link to comment Share on other sites More sharing options...
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