Darlene Posted July 7, 2014 Report Share Posted July 7, 2014 my ana is 1:80 homogenous pattern and my DNA (ds) AB is 8. my dr. is referring me to a rheumatologist to check for lupus. my scl 70, sed rate and c reactive protein is normal. i ve been down this road before and was told "i don't think it's lupus". i ve had to lyme tests. elisa positive and western blot negative. i was told "i don't think you have lyme", i have brain lesions, i was told "i don't think you have ms". i wonder the dr will ever figure out what this systemic burning sensation is. Quote Link to comment Share on other sites More sharing options...
corina Posted July 8, 2014 Report Share Posted July 8, 2014 I sincerely hope you'll finally get some answers darlene Quote Link to comment Share on other sites More sharing options...
looneymom Posted July 8, 2014 Report Share Posted July 8, 2014 The burning sensation sound like a sign of nerve pain. Have you been to a neurologist? I would want a new set of eyes to take a look at your testing? There is something going on here and you deserve answers. Hang in there . Has anyone considered a form of encephalites? Sometimes this can come on gradually. Wishing you the best and hope you find answers soon. Quote Link to comment Share on other sites More sharing options...
gjensen Posted July 8, 2014 Report Share Posted July 8, 2014 I would guess it is nerve pain. I am starting to get it. Even into the stomach etc. I had a positive ANA, and some blood protein abnormalities. After the hematologist, I want to see a rheumatologist. There is something going on, and my impression is that you need a new set of eyes. I really hope that you get your answers soon. Quote Link to comment Share on other sites More sharing options...
looneymom Posted July 9, 2014 Report Share Posted July 9, 2014 Hi Darline,I found an article on the ANA and DNA. My son tested negative about 3 years ago for ANA but probably needs to be rechecked. I found this article interesting because it stated that Lupus may not show up for several years after a positive ANA. Just wanted to encourage you to stay strong and keep looking for answers. Here are a couple article. Hope they help.http://rheumatology.oxfordjournals.org/content/39/6/581.fullhttp://www.hopkinslupus.org/lupus-tests/lupus-blood-tests/ Quote Link to comment Share on other sites More sharing options...
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