Katybug Posted June 10, 2014 Author Report Share Posted June 10, 2014 You guys are the BEST! Thank you for all the amazingly kind and healing and supportive thoughts and prayers. It really means a lot.An update. .... Dr. H called me tonight to talk after reviewing my recent upright mri. Compared to the one from November, C3-4 has now deteriorated to be as bad as C4-5. It's not a great predicted outcome to try to do all 4 levels at the same time, so we are planning on only doing C3-4 & C4-5 tomorrow. I did give him permission to do more if he gets in there and there is a bigger safety concern in not doing the other two levels than there is in holding off. If we have to do the other 2 levels in the same surgery it would increase my chance to 50% that one of the fusions would not take. He says he would much prefer to do the worst now and then do the other 2 at a later date if/when we have to. Doing 2 now and 2 later makes things much safer and more likely to heal properly. I don't think it really changes too much for me as far as tomorrow goes. It does mean an increased chance I'll be having a second surgery in the future. Oh, and he also said from a symptoms standpoint, that theses 2 levels are likely causing me the most problems so we will hopefully be addressing the area of greatest concern all around. Quote Link to comment Share on other sites More sharing options...
DeGenesis Posted June 10, 2014 Report Share Posted June 10, 2014 That's exciting. I don't envy you, but it looks like you're in good hands, literally. Quote Link to comment Share on other sites More sharing options...
looneymom Posted June 10, 2014 Report Share Posted June 10, 2014 Praying for you and hope all goes well today. Relax and rest! Wishing for a speedy recovery and post when you feei up to it. Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 10, 2014 Author Report Share Posted June 10, 2014 Quick note. I'm doing well. Woke up around 12. Catnapping on and off since. Ate a full soft meal. Sore throat from breathing tube but no pain at all otherwise. Quote Link to comment Share on other sites More sharing options...
Becia Posted June 10, 2014 Report Share Posted June 10, 2014 Sending prayers and positive energy your way. Quote Link to comment Share on other sites More sharing options...
LastUnicornLady Posted June 10, 2014 Report Share Posted June 10, 2014 So glad everything went well! I will definitely be praying for a quick and smooth healing, as I know those can be rough for someone with EDS. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 10, 2014 Report Share Posted June 10, 2014 So glad you made it through ok and that you aren't in too much pain. Please update through your healing process when you can. ((hugs)) Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted June 10, 2014 Report Share Posted June 10, 2014 sending good healing vibes! Quote Link to comment Share on other sites More sharing options...
bellgirl Posted June 10, 2014 Report Share Posted June 10, 2014 Healing prayers, Katybug!! I knew the Great Physician was there in the midst of your surgery...no worries. Since this one went so well, you won't have as much apprehension the second time around. He is with you wherever you go!! Quote Link to comment Share on other sites More sharing options...
IceLizard Posted June 10, 2014 Report Share Posted June 10, 2014 Glad you made it through! I hope you recover easily and find that the surgery has improved your symptoms! Quote Link to comment Share on other sites More sharing options...
DeGenesis Posted June 10, 2014 Report Share Posted June 10, 2014 Make sure you enjoy the morphine while you can. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted June 11, 2014 Report Share Posted June 11, 2014 Whew. We can breathe a bit Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted June 11, 2014 Report Share Posted June 11, 2014 Great to hear how well you are doing. Here's to continued improvement. Quote Link to comment Share on other sites More sharing options...
gjensen Posted June 11, 2014 Report Share Posted June 11, 2014 Very good to hear. Quote Link to comment Share on other sites More sharing options...
blueskies Posted June 11, 2014 Report Share Posted June 11, 2014 Hi Katybug,I'm so glad to hear that the surgery is done. And you are eating, already! Good sign. Am wishing you a quick recovery. blue Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted June 11, 2014 Report Share Posted June 11, 2014 I'm glad it went okay. Sending you best wishes for a quick recovery!Lyla Quote Link to comment Share on other sites More sharing options...
valiz Posted June 11, 2014 Report Share Posted June 11, 2014 Katybug, I want to second everything that Bellgirl stated. You are in good hands and your Dr. sounds awesome too. Continue to pray for your recovery. liz Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 12, 2014 Author Report Share Posted June 12, 2014 Thanos everyone! I'm home now and still doing pretty well. When I can write more I will tell you how it went. I'm still a bit groggy because I've had to take quite a bit of benedryl as my mast cells are not behaving. Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 16, 2014 Author Report Share Posted June 16, 2014 Update. ...Still progressing well. Was able to walk with my friend who came over to walk the dog. I put my neck brace on for the walk. We walked for about 15 minutes. I think it was about 80 degrees and I didn't feel like I was going to die from the heat. I'm wondering if it could even be possible that my temp regulation issues might be better. I haven't been having crazy temp fluctuations in the house either. I have been a bit POTSie. Not surprising since I was doing nothing for several days. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted June 16, 2014 Report Share Posted June 16, 2014 Well, Katie, it could be that neck issues are related to the temp issues. I have kept up with the MS research where they say that opening up the curvy veins in the neck clears up their dysautonomia issues...with heat intolerance being a major one cleared up! Some MS patients have been claiming this for a few years. (Of course, some researchers say it does not clear up MS, but patients say it clears up the symptoms). So, who knows??? I'm glad you're finding the benefit. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted June 16, 2014 Report Share Posted June 16, 2014 Way to go Katy!! Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 16, 2014 Author Report Share Posted June 16, 2014 BTW...You guys have been the best cheering section EVER!! Quote Link to comment Share on other sites More sharing options...
Raisin Posted June 17, 2014 Report Share Posted June 17, 2014 So glad to hear you are on the mend. Please continue to tell us how you are doing! Quote Link to comment Share on other sites More sharing options...
corina Posted June 17, 2014 Report Share Posted June 17, 2014 So happy for you Katie!!! Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted June 18, 2014 Report Share Posted June 18, 2014 It sounds like you're doing well, good for you! And here's to a really quick recovery! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.