kitt Posted June 25, 2014 Report Share Posted June 25, 2014 Before trying prescription meds have you had your catecholamines checked? Meaning a blood test done while standing to check your norepinephrine levels?Norepinephrine and sleep are intrinsically tied together. A sleep study may be of no value if your NE levels are very high (which would indicate you have hyperadrenergic pots). Hyperadrenergic pots includes having sleep disturbances accompanied by temp changes...Including sweating and waking suddenly from a deep sleep.Sigh...Am sorry you're experiencing this for whatever reason. A simple catecholamine blood test provides much more definitive information than a forum can provide.I had wicked episodes of not sleeping, night sweats, sudden awakening etc..I knew I had hyperadrenergic pots and even though I knew and my cardiologist knew I was extremely hyperadrenergic it wasn't until I went to Mayo in MN earlier this year that I got help for this. The sleep specialist I saw there knew immediately that I did not have a sleep issue that could be helped with a sleep study but rather a biorhythm disturbance that he gave me very precise instructions for. It worked. I learned from the pots specialist and pots researcher there (neurologist) that sleep and hyperadrenergic potss are tied in such a way that it becomes a 'chicken and egg' situation. I had to resolve the sleep issue first before proceeding with more pots medications. Sleep aids of any kind were absolutely NOT recommended.Am wishing you a speedy resolution with this! It's a difficult situation. Sleep is so important but it's critical to establish the cause of your sleep disturbance before embarking on meds or a sleep study.Best, K Quote Link to comment Share on other sites More sharing options...
writerlymom Posted June 25, 2014 Report Share Posted June 25, 2014 Kitt- what did you do to resolve the sleep issues without meds? What meds did you end up with after the sleep was resolved? Just wondered, because so many people (including me) can't get to Mayo and most docs don't know to do these tests. I suspect Paxil helped me because it suppresses norepinephrine... however I also think that's why so many people have trouble going off it- it's as if there is a magnified charge of norepinephrine when weaning off. Quote Link to comment Share on other sites More sharing options...
kitt Posted June 25, 2014 Report Share Posted June 25, 2014 . Quote Link to comment Share on other sites More sharing options...
lewis Posted June 25, 2014 Author Report Share Posted June 25, 2014 kitt- thanks for the information,.I would really like to know the biorythym information and will start a new thread so the information won't get lost. also the propranolol actually increased my bp a bit which was good. I had my catecholamines tested and they were normal on the lower end of the scale, however they tested then while I was sitting. Quote Link to comment Share on other sites More sharing options...
kitt Posted June 26, 2014 Report Share Posted June 26, 2014 I said biorhythm but it's CIRCADIAN rhythm, not biorhythm! Am so sorry for making that error. I don't know what I was thinking. Best, K Quote Link to comment Share on other sites More sharing options...
lewis Posted January 22, 2016 Author Report Share Posted January 22, 2016 Brought this thread back up since my sleep disturbances left for almost a year and now are back with a vengeance. Anyone had similar issues and had a sleep study done and were able to get results that helped? Some one mentioned earlier that they had a fit bit that showed them totally out until they woke up suddenly and didn't sleep well after that. This is just how mine shows. Quote Link to comment Share on other sites More sharing options...
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