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Anyone have this?


ariella
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sorry to keep putting different symptoms out there, but my doctor is convinced there is another chronic thing going on and we haven't yet figured it out.

Does anyone have pain which is much worse on one side?

It feels like there is no blood getting to my right side-arm and leg. It feels like an elephant is sitting on my right side. Not constant, but often, and worse at night. Spine mri showed some disc issues, but no one thinks that's what's causing it. Why are they not ordering circulation studies? Could POTS cause this type of pain?

Ariella

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I'm sorry, I haven't read many of your posts so I don't know what all you're dealing with. Do you have joint, bone, muscle pain?

I have worse problems with my left leg and right arm. I've had many pain issues which I take Neurontin for and find that it works great for me.

I know I have poor circulation as my extremities are usually freezing but this has gotten better since I've been on epogen and iron for the past year.

Is your doc familiar with Dysautonomia and POTS? There are over 60 documented related symptoms of POTS. Have you read completely through the Pots Place website? There are many answers right here.

Steph

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Steph,

what's confusing is the symptom overlap. I've been having tachy/ breathing/ pre-syncope and dizziness for years. About 2 1/2 years ago I started having trouble walking. Not because I felt exhausted, but my legs would just hardly move, it was progressive, as if the muscle was slowly dying. It was painless. It's always worse after an infection. As my autonomic stuff progressed (more recent) I started having this painful numbness on the right side, and now sometimes have annoying upper back pain, which wasn't borne out on the spinal mri. Thought it was heart related if it's not back related, but cardio is sure it's spinal. A lot of back pain is referred pain from somewhere else, they just took 7 tubes of blood this morning to see if anything looks stranger than usual.

Ariella

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Two things. The mid-upper back pain was one of my first symptoms of POTS. I've had an MRI and it was negative. They can't figure it out but my beta blocker helps with that pain, so I think it's heart or circulation.

Second, I'm working on the bulletin boards at work for next month and I just finished reading the following info which I found very interesting -

http://www.myasthenia.org/information/summary.htm

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