Jump to content

Recommended Posts

Hello,

A lot of people get shortness of breath but mine is like:

ill be sat up and the longer im up or stood up ill feel like my chest is dry inside like no blood and it gets a bit tight and cant get deep breaths and feel lethargic, ill lay down and within 10 mins it will be a lot better.

I can only imagine bloods slowly pooling and the veins and arteries in the lungs are getting tighter and tighter reducing blood flow to keep a decent pressure?

Its horrible its literally my worst symptom!!!!

Link to post
Share on other sites

I find that when I have to sit for a long time, I will get a strange sensation in my chest, almost like an empty feeling? And I'll be gasping for breath, just sitting and I'll feel really bad and want to lie down. Mostly it will be when I'm in a meeting or something and sitting still for ages, and I just have to try and push through. It's really unpleasant though. Maybe you should talk about it with your doctor.

Link to post
Share on other sites

Mine is more like a pressure/tightness-like my lungs can't expand enough. I feel it all the way from the bottom of my sternum up into my throat. I wonder if it's muscle related? Like a muscle cramp??? It's mostly when I stand, but can be when sitting also. I don't have it when lying down or when I get up in the morning. I had a pulmonary function test at my regular doctor's office and it said "suggestive of neuromuscular disease" so she sent me to a pulmonologist. He repeated the test and said it was normal-???? So, I just gave up on trying to figure it out. I did buy a finger pulse-oximeter that measures your oxygen level on your fingertip and mine is always ok--so that gives me some peace of mind that I'm probably ok even though I feel like crap-haha.

Link to post
Share on other sites

I'm getting more restricted breathing and recent tests showed reduced lung capacity. I get very out if breath even doing minor things. Along with tachycardia it's quite unpleasant. Not sure what's best to do to improve it.

Link to post
Share on other sites

I have a variety of triggers and seemingly no trigger.

The one that troubles me the most is like someone flips a switch. I can be lying down, sitting up, standing . . .does not matter. Something changes. Something I thought was interesting is suddenly my HR will become subdued. I do not think it is the cause because it does not always happen first.

I do not know how to explain it. I just suddenly feel different, and it does feel like someone flips a switch. The trouble breathing with this is awful. Very labored, and my oxygen level does drop. It has never dropped to dangerous levels, but a measurable difference. I will be running at 93/94 instead of my normal 98/99. Sometimes it lasts for a short time, other times it can last a long time. The longest as been all day.

I also get some grief associated with reflux on occasion. Then sometimes I wonder if I am having an allergic reaction to something. My throat and nose will tighten up etc.

dkd . . . I suspect that I would test differently depending on when you tested me. I am never the same.

Then of course the common orthostatic shortness of breath.

And I will wake up having trouble catching a breath, and issues with the sleep transition.

Early on these symptoms could progress into an anxiety attack. After hours of it, it can start getting to you. Generally, I do not get to worked up emotionally over it, but occasionally it does bother me. Depends how bad it gets.

The breathing has been a big deal recently. It gives me more trouble at times than others.

My "worst symptom" changes from week to week.

Link to post
Share on other sites

Andybonse, I get that too, the shortness of breath from being upright. I've always thought it felt like I had a bunch of weight on my chest or something, like it takes a huge amount of effort to breathe. It's very different from the shortness of breath that can come on at any time.

I got it during my last tilt table test and mentioned it to the lab tech, who knew quite a bit about POTS. And he said a lot of people reported it and, like the article you found mentions, that it has to do with lack of blood flow to the chest. Nice research!

Link to post
Share on other sites

Yes, get this too, standing and sitting. Almost feels like suddenly my body forgets to breathe by itself and I have to take a deep breath and get air in. I think upright it's to do with lack of blood to the chest, as Andy proposes, and sitting, no idea.

Link to post
Share on other sites

Fascinating. I had to sit on the floor while making toast because I was feeling oxygen deprived as you describe. I have 40% blood pooling when sitting up (not even standing yet). Ergo, does that mean it may be pooling in the bottom of my lungs (where we take in less ventilated oxygen) or perhaps it is not getting to the lungs? Either way it would form an imbalance of ventilation/perfusion I suppose. I do notice that midodrine helps me for about 3 hours and then it will start happening again on the bad days. I feel like a wind up toy....add midodrine and watch her go! Lol

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...