xRobin Posted March 20, 2014 Report Share Posted March 20, 2014 I am newly diagnosed, and this started in late November. I caught a chest cold and my asthma flared up, and my chest felt horrible and tight. And, during that time I got POTS, somehow. Now the cold/asthma is long gone but I still get pressure in my chest. I've been to my primary care three times, had a normal EKG, and he is unconcerned but I think I need a more thorough work up just in case. I just made an appointment to talk to him about a cardiology referral. I don't see many people talking about this, but, it seems to be mentioned a lot in the literature and for me it is my scariest symptom. My chest tightens and I feel pressure when I stand up, when I lie down for a little bit (then it gets better), on exertion, and sometimes after meals. It's diffuse, and hurts more when I breathe in. Sometimes it almost feels respiratory though I never get winded. Sometimes it shoots up to my shoulders and down my arms, and sometimes my back hurts too. It's improved a bit since I've been put on a beta blocker and florinef.I was just wondering if other people experience this, what type of work ups you've had and how you cope? Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 20, 2014 Report Share Posted March 20, 2014 You are not alone. That was actually my first symptom that I noticed....the elephant that would sit on my chest everyday. It got worse for a while with the pains down my arms and I would also feel like to veins in my neck would become very restricted. It was scary but I had a pretty thorough workup and nothing is obviously wrong other than pots. I had ekg, echo, stress test and it didn't show anything. We have had quite a few conversations on this forum about it but it comes up maybe every 3 months or so when we have some newer members join. You might find some of the old threads if you do a search on here. I would have it checked out thoroughly because there are other differential diagnoses for these symptoms. However, you may find that it is another one of the mysteries of pots. Quote Link to comment Share on other sites More sharing options...
Sheenar Posted March 20, 2014 Report Share Posted March 20, 2014 I have this as well --it's very disconcerting. EKG and echo came back okay (other than neurocardiogenic syncope).Definitely one of my more bothersome symptoms related to dysautonomia other than the temp regulation issues and dizziness. The elephant sitting on my chest is a very good descriptor of what it feels like.I'm sorry you are dealing with this as well. Quote Link to comment Share on other sites More sharing options...
andybonse Posted March 20, 2014 Report Share Posted March 20, 2014 I have a theory that, because we cant vasoconstrict in the lower body, the ans tries to constrict the upper body which causes pressure and reduced blood flow to brain causing symptoms. Quote Link to comment Share on other sites More sharing options...
xRobin Posted March 20, 2014 Author Report Share Posted March 20, 2014 Hi, thanks for the replies. I'm glad it's not just me and that POTS can cause these symptoms. I am definitely seeking a work up, though, just in case. Katie, I did a search but I must not have gone back far enough! Most of what I saw was chest pain in conjunction with actue events. Andy, that's an interesting theory. I know that I am stiff and sore all over when I've been standing or sitting for a while, maybe there is a lack of circulation? Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 20, 2014 Report Share Posted March 20, 2014 I'll see if I can find old threads and link them...I'm on my phone right now but I can get on my computer later. Quote Link to comment Share on other sites More sharing options...
kim5204 Posted March 20, 2014 Report Share Posted March 20, 2014 I have this all the time I had a check up with my gi doctor yesterday tell him,all the symptoms which seem to be getting worse and he brings me himself down to the er and gets some blood work done an ekg all come back fine puts me on propranolol low dose will pick that up tomorrow. I think its al, about the blood flow with the dysaustonmia. Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 21, 2014 Report Share Posted March 21, 2014 I am having some sort of crazy problem with copy/paste. If you search under "shortness of breathe" , you will find many threads with people mentioning their chest pain and compression. Sorry, I would pull some for you but my computer is acting like IT has brain fog tonight. Quote Link to comment Share on other sites More sharing options...
LastUnicornLady Posted March 21, 2014 Report Share Posted March 21, 2014 Ugh. I get this a lot. It feels like there's a tight band around my chest. Maybe one of those exercise bands? Not sure what causes it or how to get rid of it. I usually just end up laying down with my arms behind my head in an attempt to open my chest up as much as possible. Quote Link to comment Share on other sites More sharing options...
Freaked Posted March 22, 2014 Report Share Posted March 22, 2014 Get this a lot. It may be our sympathetic systems, similar to sensations during a panic attack, though I never had one before POTS so can't be sure. Quote Link to comment Share on other sites More sharing options...
xRobin Posted March 22, 2014 Author Report Share Posted March 22, 2014 I am having some sort of crazy problem with copy/paste. If you search under "shortness of breathe" , you will find many threads with people mentioning their chest pain and compression. Sorry, I would pull some for you but my computer is acting like IT has brain fog tonight. Thanks! I appreciate it. I don't really get short of breath much so I didn't use that search term. Looks like I missed stuff. Quote Link to comment Share on other sites More sharing options...
dkd Posted March 23, 2014 Report Share Posted March 23, 2014 I often feel a tightness in my chest, from the bottom of my sternum up to my throat, and I have to breathe through my mouth to get more air.I don't describe it as an elephant, but more like a 20 lb cat sitting on my chest -lol (I've had pulmonary tests and supposedly they were normal. The first one said air trapping and possible neuromuscular disease, the second one was normal, so the doc went with normal). Quote Link to comment Share on other sites More sharing options...
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