Sleepbree Posted February 27, 2014 Report Share Posted February 27, 2014 Today I had my tilt test and failed. I never quite passed out but I was certainly about to, they kindly lowered the table because they gained all the info they needed by the time I was about to drop. I went from 80's supine up into the 140's within 15 minutes. Throughout the test my bp was all over the place. So afterward my EP came in and said well, I think you have POTS! So in addition to the beta blocker I am on(50 mg Metoprolol, down from 100 mg), I was put on low-dose Midrodine to start and he will see me in 4 weeks to follow up and see how I am doing on that.I am so happy to finally have this acknowledged for what it is, I never got a direct answer from my old EP, the two tilt tests were like night and day (one in office with 2 nurses only, today's in a hospital setting with the doctor present). My old EP called it OI, IST, among other things. It seemed like he was reluctant to call it anything specific. Honestly, I wanted/needed a true diagnosis to know how to proceed with meds and frankly, life.So, I am hopeful the meds will make a difference and the moral of the story is what it always is: follow your instincts. I spent a lot of time wondering if I was doing the right thing by changing docs but overall, my old one wasn't providing me with the answers I needed, and ultimately kept raising my beta blocker every time I mentioned I was not feeling better; when in all reality, the high dose was making me feel worse. For the first time since July of last year, I actually feel hopeful. Quote Link to comment Share on other sites More sharing options...
Hope Posted February 28, 2014 Report Share Posted February 28, 2014 Sleepbree,So glad you're getting some answers! I hope the change in your meds help and you will be on your way to feeling better =) I too had to change my primary physician before I started getting any help. Sometimes it's just not a good fit.Be well!Hope Quote Link to comment Share on other sites More sharing options...
corina Posted February 28, 2014 Report Share Posted February 28, 2014 Glad you are getting answers! Keep up hope! Quote Link to comment Share on other sites More sharing options...
JuneFlower Posted February 28, 2014 Report Share Posted February 28, 2014 Good for you for advocating for yourself. I am constantly doing that for myself and my daughter. It's sad really but drs are people and sometimes don't admit when they are stuck. Feel better.June Quote Link to comment Share on other sites More sharing options...
looneymom Posted February 28, 2014 Report Share Posted February 28, 2014 Glad to hear that you finally have answers. Hope the new medications will help.Rachel Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted February 28, 2014 Report Share Posted February 28, 2014 Glad you have your diagnosis. It's such a relief to finally get a diagnosis and feel like now you might actually be able to get somewhere with your health. Hope the medication helps.Best Wishes,Lyla Quote Link to comment Share on other sites More sharing options...
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