leydengs Posted February 10, 2014 Report Share Posted February 10, 2014 I have been having a very rough few months. I was diagnosed with POTS a few years ago and I have good and bad days but for the last few months every day I feel worse and hurt worse. I went to the doctor because my left thigh is totally numb and my right leg keeps giving out on me when walking. After some blood work she found that my liver enzymes were slightly elevated and I had 1 kidney showing abnormal function and my CK (muscle enzyme) test was extremely high. Average is something like 38-243 and mine were 2625 (levels they see with someone having a heart attack) so I was told to rest, rest and rest. No working out at all which was fine with me because I'm so exhausted all I want to do is sleep. Now that my flare up is over my levels are all back to normal. Does POTS cause CK levels to spike that high? My doctor is looking into some sort of muscle disorder but so far they still know nothing. Just curious is other POTSIE people have this problem or if this is something different? Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 10, 2014 Report Share Posted February 10, 2014 Pots itself does not cause elevated CPK levels. You might want to look up the different types of myositis and see if you think you should talk to the doctor about that. I know that's one thing that can elevate CPK. Quote Link to comment Share on other sites More sharing options...
leydengs Posted February 10, 2014 Author Report Share Posted February 10, 2014 Thank you Katybug, that is exactly what my doctor is suspecting at this point. Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 11, 2014 Report Share Posted February 11, 2014 There are autoantibody tests that can be run to dx myositis. Believe it ir not, Wikipedia has a pretty comprehensive explanation with details about diagnostics and treatment. Quote Link to comment Share on other sites More sharing options...
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