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Interestingly enough, newborns commonly have acrocyanosis due to immature nervous systems - Raynaud's also causes an acrocyanotic-like condition by turning the hands/feet a mottled blueish color - not from an oxygen defecit but, from the nervous system malfunctioning - I guess your physician needs to determine the origin of the acrocyanosis to best know how to treat it - I occasionally have vasospasms in my hands which cause my fingers to turn deathly white - this type of vasospasm does indeed restrict circulation and thereby cut off oxygen supply to the fingers......

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The newborns actually have it from the mixing of oxygenated and unoxygenated blood that happens for the 1st 24hr due to the fetal circulation's ducts still opening and closing in the heart and the liver circulation. (I'm a medical professional in obstetrics). It is not normal in an adult.

June

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  • 8 months later...

I have it too. It gets worse if I'm standing in place or after a shower. I read an article awhile ago from Dr. Raj talking about this. It didn't say a lot about it, but he said that it's still not entirely understood but that it's likely from a lack of blood flow under the skin not from blood pooling per se.

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I got it too. It definitely has a very strong correlation with how strong my POTS-symptoms are in general.

When I was at my worst in Feb/March this year, I got it from just sitting for 2-3 minutes. Now I don't get it from sitting at all, neither when I am walking or making other moves with my legs.

The only posture I get it from now is standing still. It will start after 3-4 minutes and be in "full blow" after 6-7 minutes.

However, as time goes by and I improve in general, it takes more time of standing still to appear.

Therefore, I would say acrocyanosis for me is a perfect marker for how bad my POTS is. Anyway, no doc yet could give me a clear explanation of what it actually stands for physiologically...

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I've always thought that my acrocyanosis is from blood pooling in my legs. If I stand still with one leg on the floor and one leg up on something, then only the leg down on the floor goes purple/grey. Also when I walk they go back to a more normal colour, and I assumed that was because the blood was being pumped back up due to activation of the calf muscles.

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  • 4 years later...
  • 1 year later...

Hi All,

Yes. I have this too.  I have severe Dysautonomia due to trauma. I also have CRPS, POTS, MCAS and EDS. Lucky me. 

I’ve been trying to get help for this recently as it wasn’t ever painful, but now as I’ve had it 4 years untreated and live at 8000 feet (to keep my body cold :-), I’ve now developed neuropathy (feels like a TENS unit turned on high on my feet and hands).

I also have no veins whatsoever. I believe my nervous system is whacked, and I’m desperately seeking treatment. I also learned that a drug I’m taking (Clonidine) can bring this on. 
 

What helps me is key POTS stuff- hydration, sodium loading, and compression stockings at least 12 hours a day. I also wear gloves on my hands when they get real swollen from cooking, gardening, etc.

Just stumbled upon this group, I know post is old, but maybe it will reach some of you. 

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