docradmd Posted February 2, 2014 Report Share Posted February 2, 2014 Who's got it? Did you ever get it to go away. Some say intense exercise helps it. Rama, what's your understanding of it? Blood pooling from vein laxity or intense arterial vasoconstriction? Quote Link to comment Share on other sites More sharing options...
JuneFlower Posted February 2, 2014 Report Share Posted February 2, 2014 My understanding is it is caused by lack of circulation in those extremities. Term acrocyanosis means cyanosis (bluish color from lack of oxygen) in the hands and feet.June Quote Link to comment Share on other sites More sharing options...
E Soskis Posted February 2, 2014 Report Share Posted February 2, 2014 Interestingly enough, newborns commonly have acrocyanosis due to immature nervous systems - Raynaud's also causes an acrocyanotic-like condition by turning the hands/feet a mottled blueish color - not from an oxygen defecit but, from the nervous system malfunctioning - I guess your physician needs to determine the origin of the acrocyanosis to best know how to treat it - I occasionally have vasospasms in my hands which cause my fingers to turn deathly white - this type of vasospasm does indeed restrict circulation and thereby cut off oxygen supply to the fingers...... Quote Link to comment Share on other sites More sharing options...
JuneFlower Posted February 3, 2014 Report Share Posted February 3, 2014 The newborns actually have it from the mixing of oxygenated and unoxygenated blood that happens for the 1st 24hr due to the fetal circulation's ducts still opening and closing in the heart and the liver circulation. (I'm a medical professional in obstetrics). It is not normal in an adult.June Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted October 29, 2014 Report Share Posted October 29, 2014 I have it Quote Link to comment Share on other sites More sharing options...
Clb75 Posted October 29, 2014 Report Share Posted October 29, 2014 I have it too. It gets worse if I'm standing in place or after a shower. I read an article awhile ago from Dr. Raj talking about this. It didn't say a lot about it, but he said that it's still not entirely understood but that it's likely from a lack of blood flow under the skin not from blood pooling per se. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted October 29, 2014 Report Share Posted October 29, 2014 Slow capillary response points to eds Quote Link to comment Share on other sites More sharing options...
Goschi Posted October 29, 2014 Report Share Posted October 29, 2014 I got it too. It definitely has a very strong correlation with how strong my POTS-symptoms are in general.When I was at my worst in Feb/March this year, I got it from just sitting for 2-3 minutes. Now I don't get it from sitting at all, neither when I am walking or making other moves with my legs.The only posture I get it from now is standing still. It will start after 3-4 minutes and be in "full blow" after 6-7 minutes.However, as time goes by and I improve in general, it takes more time of standing still to appear.Therefore, I would say acrocyanosis for me is a perfect marker for how bad my POTS is. Anyway, no doc yet could give me a clear explanation of what it actually stands for physiologically... Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted October 29, 2014 Report Share Posted October 29, 2014 I've always thought that my acrocyanosis is from blood pooling in my legs. If I stand still with one leg on the floor and one leg up on something, then only the leg down on the floor goes purple/grey. Also when I walk they go back to a more normal colour, and I assumed that was because the blood was being pumped back up due to activation of the calf muscles. Quote Link to comment Share on other sites More sharing options...
Flixo Posted January 6, 2019 Report Share Posted January 6, 2019 I got it too. Here there are some pics: Is there someone I can talk to? I'd be really fine, sometimes I think I'm the only one on this planet who has this strange condition. Quote Link to comment Share on other sites More sharing options...
Jariel Posted October 31, 2020 Report Share Posted October 31, 2020 Hi All, Yes. I have this too. I have severe Dysautonomia due to trauma. I also have CRPS, POTS, MCAS and EDS. Lucky me. I’ve been trying to get help for this recently as it wasn’t ever painful, but now as I’ve had it 4 years untreated and live at 8000 feet (to keep my body cold :-), I’ve now developed neuropathy (feels like a TENS unit turned on high on my feet and hands). I also have no veins whatsoever. I believe my nervous system is whacked, and I’m desperately seeking treatment. I also learned that a drug I’m taking (Clonidine) can bring this on. What helps me is key POTS stuff- hydration, sodium loading, and compression stockings at least 12 hours a day. I also wear gloves on my hands when they get real swollen from cooking, gardening, etc. Just stumbled upon this group, I know post is old, but maybe it will reach some of you. Quote Link to comment Share on other sites More sharing options...
MrsH Posted February 21, 2021 Report Share Posted February 21, 2021 Flixo - did you ever get a diagnosis? I have exactly the same phenomenon as your photos show. Purple hands when hang down but go pretty much back to normal colour when hold them up. I know I have low blood pressure, am quite ‘veiny’ and really feel the cold! Would love to know what’s causing this :) Quote Link to comment Share on other sites More sharing options...
Nin Posted February 21, 2021 Report Share Posted February 21, 2021 Anyone get blotchy legs red/purple blotches everywhere? Quote Link to comment Share on other sites More sharing options...
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