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Could It Really Go Away?


MomWithPots
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Every article I read says Pots could go away in your mid 20's. Has anyone gotten better? I was diagnosed 2 yrs ago, but developed pots at 13-14. I'm now 22 and my pots has slowly but surely gotten worse over the years. I feel like the closer I get to my mid 20's the more hope I loose. I've been dealing with it for so long, I couldn't imagine not having to live around my symptoms. In fact, on the rare occasion that my HR is in the 60's when resting, it doesn't feel right, guess I'm not sure what normal feels like anymore .. Can't help but wonder what it would be like to outgrow this though! pretty bad when u dream about running and climbing stairs lol the little things taken for granted :)

Just a curious question! No matter what I'm gonna try and find the positives. I've decided that my dreams are bigger than Pots and its not holding me back :)

Good health and God bless!

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My symptoms started at 16 and slowly got worse until age 21. Then I seemed to turn around after seeing a dysautonomia specialist and finding a treatment plan that works for me. Now at 22 years old I'm definitely better than I was a year ago but not 100% back to normal either. My doctor said that 80% of his pots patients do get better by their late 20s so I'm really hoping I'm part of that 80%. My BP has stabilized and I've been able to cut back on the salt intake in the last few months but I still really rely on a beta blocker to keep my crazy heart rate under control.

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I’m 22 and also seem to have gotten worse with time, so I sympathise fully. Rubbish time in life to be chronically ill, although any age probably presents a different set of challenges. There's no reason to think that we won't improve soon though, if that's what doctors say is usual.

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Thank you all for the replies, they are encouraging! I hope we all recover! Think about getting one of those exercise bikes; After developing pots it became difficult to work out, so I gave up...other than chasing 3 kids! I've heard that can speed up progress!

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Everyone is different, but exercising has helped me improve a lot as well as a few others on this forum that I've seen. I use a recumbent exercise bike for my cardio/ leg strength training. I bought one about a year ago and it is so much more convenient to have one at home. I believe it is what has helped me improve the most. The only thing exercise hasn't helped is my high heart rate, I still need medication for that.

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I believe my trigger was this crazy diet and exercise program I was on. I was on a very low fat diet with restricted calories, and I was doing an hour of cardio a day plus lifting heavy weights for about 45 minutes a day. I would take off one day a week. I started having dizzy spells here and there, then it hit.

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I hope that you get a remission again.

I think that is interesting though. When I came down with this, I had a heavy workload at home and work. I was also losing and lost a lot of weight.

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I had lost 20 pounds. I was on a mission. Funny how your priorities change.

Yeah, the 20lbs does not matter anymore does it?

I am feeling better than I was. I keep being hopeful of improvement. Cautious hope, because I have been here before.

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I've heard that it is more likely for a younger person to recover, or if not recover, manage symptoms to functional at a normal level. I've had POTS since I was 18, but functioned pretty well (I just thought I was out of shape) for most of my life. If I suddenly woke up and didn't have POTS anymore, I think the first thing I would do is run around the block!

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I have read that it can go when you are young. I'm not sure if mine started with the ME in 1984, but looking back it probably did after glandular fever. I was 23 and we just didn't have much knowledge about it then. I think if people early on do the right things and get the right help then it just may go. I think it also depends on how much damage has been done to the nerves.

I wish everyone well and we all hope to get well or at least feel better. Thirty years on I am still searching and living my life as best I can.

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