khaarina Posted January 25, 2014 Report Share Posted January 25, 2014 I have a lot of short of breath issues but the sudden ones are the strangest. Whenever I accidentally hold my breath for just a second or two (like when I am standing up from sitting, rolling over in bed, etc.) I get this severe feeling of breathlessness, like I've been holding my breath for a really long time and I have to take several very deep breaths to regain my normal breathing. It doesn't make sense to me because I feel like I need to catch my breath when I shouldn't. I would be interested to hear ideas about where this is coming from and why. Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 25, 2014 Report Share Posted January 25, 2014 I don't know why it happens but I can relate to what you're saying. It seems like almost nothing will make me feel short of breath and oxygen deprived. Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted January 25, 2014 Report Share Posted January 25, 2014 I'm sorry I don't know why it happens either. But I get out of breath for no apparent reason, sometimes when I'm just sitting doing nothing, or even when I'm lying down. Some days I'll just randomly gasp for air every now and then, and it's not like a voluntary thing, it's like I NEED that extra air! Quote Link to comment Share on other sites More sharing options...
bellgirl Posted January 25, 2014 Report Share Posted January 25, 2014 There was a study done, I think here on Dinet, addressing this issue. They liken to it feeling like COPD. I have had asthma, before, but this is definitely different. I can't explain it. It's the reason I'm getting a stress test on Wednesday. There is a tightness, like I can't completely fill my lungs, and it does happen randomly for no apparent reason. I'll see if I can find the study. Quote Link to comment Share on other sites More sharing options...
andybonse Posted January 25, 2014 Report Share Posted January 25, 2014 I get this every single day exactly how you mention. I believe increased vasoconstriction of upper body may cause reduced blood flow to compensate for the other areas that dont work. Quote Link to comment Share on other sites More sharing options...
E Soskis Posted January 25, 2014 Report Share Posted January 25, 2014 Yep - poor blood supply to the chest and BAM! - shortness of breath - also causes the "coat hanger" neck/shoulder pain - I get relief with a small dose of midodrine over and above what I usually take - it is very annoying to be gasping for breath while conversing with someone - also, the pain can just get downright miserable! Quote Link to comment Share on other sites More sharing options...
khaarina Posted January 26, 2014 Author Report Share Posted January 26, 2014 Yes E Soskis, I am always running out of breath before I finish my sentences. It is so annoying! About the shoulder pain you mentioned: I have had unexplained pain in my right shoulder of an on for years. It is like a pinching feeling. It usually goes away within a few hours. Does this sound like what you are talking about? Quote Link to comment Share on other sites More sharing options...
E Soskis Posted January 26, 2014 Report Share Posted January 26, 2014 Kind of feels like deep pain radiating from the base of my skull down across my shoulders - almost like pulled muscles but, not responding to any kind of anti-inflammatory medication - neck can get very stiff - hard to turn from side to side - yet, massage does not help and in fact, makes it worse - after I have it for a day or two, off and on, I recognize it as the pain associated with dysautonomia - I don't know how the pain presents with everyone - it very well could be the type of pain you are describing - I'm sure we are all a little different with our pain responses...... Quote Link to comment Share on other sites More sharing options...
Darlene Posted January 28, 2014 Report Share Posted January 28, 2014 i have had difficulty breathing, but the pulse ox says 98/99. don't understand that. Quote Link to comment Share on other sites More sharing options...
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