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Poll: Most Irritating Things People Have Told You About Your Pots


Misunderstood POTS  

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APNEA DOCTORS ARE PRETTY CLUELESS BECAUSE MOST OF THEM DONT HAVE APNEA. THEY HAVE NO IDEA HOW DEBILITATING IT IS--IT CAN KILL AND CAUSE STROKE. I HAD TWO TOP RATED ENT DOCS TELL ME ABSOLUTE GARBAGE. APNEA UNTREATED CAN RUIN YOUR CENTRAL NERVOUS SYSTEM.

I had a respiratory doctor say something similar to me last year. I was undergoing sleep studies as I have lots of problems sleeping and have wakefulness, nightmares, twitching/jerking, apnoea and cessation of breathing, tongue-biting etc and he didn't think there was anything abnormal about my sleep and said it was just about my perception of the problem being different to other people. So is it normal to stop breathing (three people have witnessed this happening)? Is it normal to bite my tongue to ribbons as my head violently jerks? It is unbelievable what people say....

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  • 2 weeks later...

A whole conversation I had with a rheumatologist. Before I saw a specialist, I had a 4 month period where I was mostly bed bound. To get to this doctor my dad had carried me to the car and wheeled me in in a wheelchair.

I was wearing 2 pairs of sunglasses for light sensitivity. So first the doctor said "don't you think that's a bit rude?" and asked me to remove them.

Next up...he suggested I would feel better if I went back to work and went out with friends (apparently having visitors was insufficient). I was like "umm...some days I have to crawl to the bathroom?!"

And finally he decided I was depressed and told me that I had to accept that my symtpoms weren't actually physical in nature and I would feel much better. He KNEW I had POTS - he'd been the referring doctor for the tilt table test!

The whole interaction was the most bizarre, frustrating experience I've ever had with a doctor. He just walked out of the room after a while, it was clear there would be no follow up.

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