Feeling Alone

[Kham]

Yesterday started out to be such a great day. My husband & I have started a new church in our area & I was blessed to give my first children's sermon. IT WAS AWESOME! I loved it! At the end of the day my husband and I sat in bed talking about how great things had turned out and then BOOM...my PVCs started. I'm used to them so I blew them off. But when I layed down to go to bed they increased and I was having 10-15 of them a minute. Very dizzy & vertigo. When they didn't go away I finally went to the ER. The EKG was abnormal and they admitted me. My blood pressure was all weird. It was 103/39 at one point and then 93/45 and stayed like that but the drs never mentioned it. Anyway PVCs eventually went away and I was told to follow up with my cardio doc. It's frustrating because one minute I'm feeling pretty ok and then the next I get all of these weird symptoms. Today after all the heart activity I feel like I've been hit by a truck. Tired, weak & lonely. Wish there was someone to talk to who could say, "I totally understand, I get that too. It *****." My family is very supportive but I don't think they fully get it. Come to think of it I may not either....lol! I don't even know what category of dysautonomia I fit into. I've just been told not POTS. Sorry to barf all over everyone I just needed to vent.

[Bigskyfam]

We've been there done that at one point or another. When one feels good we live. We go and do things... Sometimes I think it's double edged and others and even ourselves forget for a bit just how much of a Rollercoaster our disorder creates. No words of wisdom but know you aren't alone. Hope better days are ahead

[Kham]

Thank you Bigskyfam. I think I do forget sometimes. The "back to reality" is a bit unnerving sometimes.