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An Embrrassing Symptom - Help!

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Ok, this is fairly (very!) embarrassing, but I could really do with help regarding this being a POTS symptom. Just hoping I could get some thoughts on whether this sounds like it is likely to be caused by POTS. So..

Firstly, since being ill my sex drive has been steadily increasing. I assumed that with a chronic illness it would become lower, but at first it stayed about where it had been, then over the last few years has just started and then continued to increase. I know it's a bit of a joke that guys think about sex all the time, but I literally do now! It's CONSTANTLY on my mind.. like a constant arousal.

Secondly, I've become super sensitive to sexual stimulation. It takes very, very little for me to reach orgasm (so basically I have premature ejaculation), and quite often I can think myself to one. I know that probably sounds bizarre but it's true! A few minutes of arousing thoughts and, well.. y'know.

Thirdly, my ability to "perform" again seems to be increased. So everything happens WAY too quickly but very soon after I feel like I could do it again, and want to as well (that would go with the constant arousal).

And lastly, for a short period every time I started to become aroused I would shake, sweat and my heart rate would race. Basically it felt like loads of adrenaline, and made me unable to become aroused without feeling like I was having a panic attack. That lasted for a few months and then went.

So, has anyone else experienced anything like this? Is it likely to be caused by the POTS? Or could it be coming from elsewhere? It feels like it somehow has to be related to a sensitivity of the nervous system or increase in adrenaline but I can find very little relating any of the things I've listed to any illnesses.

(Just to add: Even though I've been diagnosed with POTS by the tilt table test I have a whole host of other symptoms that definitely don't go with it - lots of strange markers in the blood, symptoms that are totally unrelated to POTS or are the exact opposite of POTS symptoms etc. so I'm pretty convinced the POTS is a symptom of an underlying problem.)

If anyone can help or has any thoughts that'd be great! Thanks!

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Do some investigating for PSAS (persistant sexual arousal syndrome). Also, check out pudental nerve entrapment which can cause problems. I would suspect that a uro-gynecologist might be of benefit, particularly one with experience with your problem (if it is indeed a "problem" for you. Only you know). I know of nothing about POTS that can cause this.

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Thanks very much for the reply futurehope! It's not a "problem" per se, just very strange.

I feel really weird having to discuss this but because of the length of time I've been ill (6 years) and the fact that no doctors can seem to come up with anything in regards to a diagnosis, I'm having to resort to the strangest and most embarrassing of my symptoms to try and shed some light on what is going on. At least I have a better idea that it isn't caused by POTS, anyway.

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Do you have a doctor that you're seeing that is a dysautonomia specialist? I have also had some odd changes in my sex drive....it actually swings from one end of the spectrum to the other...there's no in between. I've chalked it up to the dysfunction of the autonomic system but have never spoken to the doc about it. I think it's worth mentioning to the doctor at least so it is documented and also in case it is a clue as to your underlying cause.

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I experienced something very similar after I got really sick. My sex drive increased dramatically and I had a constant tingling feeling down there. This lasted about a year and has since cleared up, but now my drive is very low.

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Thanks for the replies Katybug and khaarina. I'm currently seeing a specialist in POTS, although I'm really embarrassed about mentioning it to him! I know I should because, as you said, it's important to have it documented, plus it may help in the long run in finding out what is going on. It's just so awkward!

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I think everyone struggles with these conversations with their doctors. But think of it like this....your reproductive system is just another set of organs. If you were vomiting all the time, you would tell your doc about that. Try to think of it in a more clinical way....that's what your doctor is doing. I've had to discuss some embarrassing things since this rodeo started and I have never had a doctor make me feel bad about sharing these things. In fact, I have felt more compassion from them on these hard to talk about subjects than at any other time. They are humans first and then doctors.....they know certain topics are awkward to discuss.

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