blackwolf Posted May 11, 2005 Report Share Posted May 11, 2005 my doc has informed me that he no longer wishes to treat my bouts of nausea with compazine. when i asked why, he said i was just making an excuse to get the compazine.i only ask for 10 pils every 4 to 12 weeks, does that sound like i'm addicted to it i just get so pissed off. i have tried about 15 pills(and supositories) with either no help or nasty side-effects(as in more nausea and vomiting to rashes and hallucinations(sp?), not to mention the dizziness and balance trouble)am i cursed with going to the er and being "the human picushion" as the poke and blow out my viens? and then only to hear the nurses and docs talk about the "nut behind the curtain". even witht he ringing in my ears i have excellent hearing and have even said in a loud voice that i can hear them. black-in the deep dark hole taking 1 step forward and 10 steps back-wolfsorry i just get so #*^*! angry at them, i only hope that the new doc i see the 1st of June can and will help. Quote Link to comment Share on other sites More sharing options...
steph37822 Posted May 11, 2005 Report Share Posted May 11, 2005 oops Quote Link to comment Share on other sites More sharing options...
morgan617 Posted May 11, 2005 Report Share Posted May 11, 2005 Why is he even concerned about it? I have never heard of it being addictive or anything. It's what I take too. I think that's way too bizarre, especially when you hardly use any. Did he say why he was concerned about you taking it? morgan Quote Link to comment Share on other sites More sharing options...
blackwolf Posted May 11, 2005 Author Report Share Posted May 11, 2005 dear steph and morgan, his reply was that i should be seen and treated more aggressively for these bouts of nausea. i have seen two gi doc that believe i am doing pretty well and the compazine is all i need. just a note about this doc, after nearly 4 years of being seen by me, he still thinks(and this is with the dx from the Mayo Clinic in Rochester) that i am just a "nut case" and am seeking attention. of course, he also believes that once i lose the weight i need to, all my problems will just go away. i am going to go see a new internal med doc, a very nice lady, from what i hear, that does have some experance with dysautonomia. she currently has 5-6 patients with msa and one with a dx of just dysautonomia so i'm hoping that she will be on the ball and just what i need right now.i guess that i'm also depressed that i have hit a big hole just as things had started to get stabilized and now i'm sliding down again.one good note, the ativan my counselor has perscribed is helping me sleep, and that is all i'm using it for.one more trip to pt tomorrow and then back to my pain doc. the TENS unit has really helped, everything but my neck is doing better and i might just go ahead and get my mri of my neck and mid back just to see how things are in there. one thing that has been suggested is going in a taking the tips off the ribs that are pinching some nerves, some thing to think about i guess. thank you all for letting me rant and rave, things have just kind of sucked lately. blackwolf Quote Link to comment Share on other sites More sharing options...
ariella Posted May 11, 2005 Report Share Posted May 11, 2005 Hi Blackwolf!I'm angry along with you. At least I've been blessed with a primary who's humble enough to put himself in my shoes. I wish you a lot of peace of mind from the new doc. When doctors respond with the psycho stuff it's only because they don't know something and are too full of themselves or too lazy too find out about something new. I know you know that, but it's alsways nice to hear it again.Ariella Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted May 11, 2005 Report Share Posted May 11, 2005 I am so sorry. I hate that we have to deal with so many self-righteous doctors that are SO clueless. Hope you soon find a doc that is more understanding. Quote Link to comment Share on other sites More sharing options...
blackwolf Posted May 11, 2005 Author Report Share Posted May 11, 2005 thanks everyone, things went a little better today, i'm just so tired, and cold. high here today of 50 after almost 2 weeks of 70's. wet too, over an inch in tow days and they say it might rain off and on till friday, whoo-hoo the 1st of June seems so far away, yet i know things can't get much worse and i can "only go up from here" again thanks everyone,black-sitting still and waiting-wolf Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 11, 2005 Report Share Posted May 11, 2005 I hope you can find a new doctor. No one with a verified diagnosis from a very reputable source deserves to be treated that way. Heck, even a bonafide nutcase doesen't deserve to have treatment for a real symptom witheld based on a subjective decision. Horrible. Really.Please think about finding someone who will believe you and treat you humanely.Nina Quote Link to comment Share on other sites More sharing options...
Ernie Posted May 11, 2005 Report Share Posted May 11, 2005 Hi Blackwolf,I am sorry that your doctor is giving so much trouble. I would have tought that he would be happy that you have finally found a medication that works for you. Maybe your GI doc could prescribe it to you!Hope it goes well with your new doctor.Ernie Quote Link to comment Share on other sites More sharing options...
morgan617 Posted May 12, 2005 Report Share Posted May 12, 2005 My Gi doc is so glad there's something I can actually take, he's thrilled to give it to me. Can either one of your GI docs order it for you, you little nutcase? With love from the stroked out panic attacker, morgan Quote Link to comment Share on other sites More sharing options...
blackwolf Posted May 12, 2005 Author Report Share Posted May 12, 2005 dear ernie, nina and morgan(and everyone else) a followup with one gi doc would be possible about the middle of june, but i'm keeping the appointment just in case. i'm putting my hopes on my new internal med doc, see her june 1st. talked for a few minutes with the parish nurse that "hosts" the MSA support group(we are thinking of calling it a dysautonomia support group now, 5 with MSA, me-POTS, and one with just dysautonomia) and she has meet her before and even offered to go with if i want her to. i have printed a lot of info off of here and ndrf site also. i will be dropping it off in the morning with my other paperwork. it looks like a case file from heck, if you know what i mean. i did speak with her very briefly just to tell her my dx and what was happening, she said she would like to try to help me. if this doesn't work, i'm going to try Dr. Grubb's, the pastor at my church says they will get money from the ELCA to get me there and a place to stay and even try to find someone to drive me around, he will be my last hope as i would have to FLY THERE...ALONE!!!!!!!!!!!! o boy, spasms got to gothank you every one and cyber hugs for your supportblack-going to be sick -wolf Quote Link to comment Share on other sites More sharing options...
corina Posted May 12, 2005 Report Share Posted May 12, 2005 Hi Blackwolf,I'm having severe brain fog, so I couldn't read all the answers and I didn't understand everything but I noticed you're in trouble. I'm very sorry for that. I wanted to let you know that I'm thinking about you (I don't have anything else to do, so thinking of you all keeps me busy ). I have an appointment on June first as well with my new dysautonomia doc. We can wait together. Try to keep up your head! Nina and I will be flying around next week to get everyone out of the hole, be prepared Corina Quote Link to comment Share on other sites More sharing options...
Ling Posted May 12, 2005 Report Share Posted May 12, 2005 Hi BlackwolfSorry to hear about the way you are being treated. I am actually happy this doctor has stopped treating you. You don?t deserve this treatment and need to find a REAL doctor. Good luck with your appointment with the new doctor. I hope she is everything you hope for. One of the problems of pots is the abuse we get from doctors. It seems to be worldwide. Sad but true.Thinking of you. Quote Link to comment Share on other sites More sharing options...
blackwolf Posted May 13, 2005 Author Report Share Posted May 13, 2005 thank you corina and ling,still in the hole, but a little happier as i got a script today to purchase my TENS unit, it has helped so muchstill so sick, keeping it short on typing, but "lurking".cyber hugs to everyone,blackwolf Quote Link to comment Share on other sites More sharing options...
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