Bigskyfam Posted November 21, 2013 Report Share Posted November 21, 2013 Propranalol was a no go, doc wants me to try nadalol. Im ready to start lifestyle changes.. Exercise, salt,fluids and compression stockings. Maybe then add meds. Is that unreasonable? Does anyone have success with lifestyle measures only? I haven't been given a subtype or anyinterest in testing. Given my plan and told to follow up in a month. Quote Link to comment Share on other sites More sharing options...
Chaos Posted November 22, 2013 Report Share Posted November 22, 2013 Think you know your body best and given your reaction to the propanalol I can certainly understand your hesitation to start the nadalol. (Personally I love nadalol but that's me, not you.)Seems like a lot of docs recommend lifestyle changes first before they add any meds. Did your doc mention raising the head of the bed 4-6 inches? My POTS neuro at Mayo did and I am trying to find the article that talks about why it might be helpful but it might be something to consider. If nothing else it provides comic relief as you keep sliding down and trying to climb back up every night. Good thing about lifestyle changes is they are pretty benign and you are in control. Also don't have a lot of side effects for the most part. I have heard people having success with them. Like everything else with this condition it's all so individual the only way you'll probably know is to try. Good luck. Quote Link to comment Share on other sites More sharing options...
margiebee Posted November 22, 2013 Report Share Posted November 22, 2013 I would say lifestyle changes helped me about 75%. But keep in mind I'm including a pretty involved exercise routine as part of that. I don't really fit a subtype either, I've had the testing. No neuropathy, blood volume issues and semi-normal hormone levels in my case. Might be autoimmune, but pretty much just the garden variety onset-with-puberty young adult POTS for me. From what I've seen, that seems to be the most responsive "type" to lifestyle treatment alone, but anyone can be helped by these things. Quote Link to comment Share on other sites More sharing options...
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