Bigskyfam Posted November 19, 2013 Report Share Posted November 19, 2013 After 6 weeks of displaying symptoms of POTS, my cardiologist ordered a tilt table which I failed. Diagnosed with primary POTS.. No subtype identified. I am a first for many of my doctors here. I'm glad they are reaching out to mayo docs to compile a gameplan. While I know what a blessing a timely diagnosis is, it's also frustrating to start the trial and error phase. I elevated my bed 6 in, increased sodium/ fluids, recumbent bike... Started propranolol today... Not sure if this bad day is par for course or due to meds. I enjoy reading the forum and feel it'll be a great source of support/ comfort in my neck of the woods. Any advice/ hints or stories appreciated. Quote Link to comment Share on other sites More sharing options...
looneymom Posted November 19, 2013 Report Share Posted November 19, 2013 Hi and welcome to the forum. It's great to hear that your doctors are reaching out to other specialist. Keep up the exercise but don't over do it. Do they know what brought your POTS on? Many on the forum have underlying conditions that started their POTS. Wishing you the best and don't be afraid to ask questions.Rachel Quote Link to comment Share on other sites More sharing options...
corina Posted November 19, 2013 Report Share Posted November 19, 2013 Hi Bigskyfam, welcome. I hope the website and forums will give you answers and support! Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 19, 2013 Author Report Share Posted November 19, 2013 Thank you for the warm welcome... I had a gyn surgery in jan and dental surgery in aug... No virus that I can think of. Lots of tests to rule out underlying conditions. Haven't quite felt like myself since Jan..I've always been an active person( wife, mom, employee, student, volunteer). But oct 5th is when it hit me.Ive been off work for a month and had to drop my classes. Is anyone else able to work? Depending on others and not being able to do my norm has been hard. Trying to make little adjustments to cope. Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 19, 2013 Report Share Posted November 19, 2013 Welcome. Sorry you find yourself needing our company but glad you found us. Quote Link to comment Share on other sites More sharing options...
Faintinggoat Posted November 20, 2013 Report Share Posted November 20, 2013 Welcome to the forum! Wishing you well wishes on your POTS journey! Quote Link to comment Share on other sites More sharing options...
Aimes Posted November 20, 2013 Report Share Posted November 20, 2013 Hi Bigskyfam! I'm from North Dakota so we're practically neighbors! I've had POTS symptoms since I can remember and was diagnosed almost six years ago. This forum has been a huge help to me. It's so nice having support from others who understand! :-) Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 20, 2013 Author Report Share Posted November 20, 2013 Thanks you guys. North Dakota is the closest. already I feel part of the group. Trial and error phase. Honeymoon phase.. Everyone says "get better soon". "Now we have a plan". How do you handle this 6 yrs in? Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted November 20, 2013 Report Share Posted November 20, 2013 Hi Bigskyfam,Welcome to the forum!You are really lucky to have a diagnosis so quickly, but I hear you about the trial and error phase, it is frustrating.Hang in there, and hopefully your doctors will come up with something that will really help you soon.Best Wishes,Lyla Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 20, 2013 Author Report Share Posted November 20, 2013 Thank you! Me too! How long have y'all been battling pots? Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted November 20, 2013 Report Share Posted November 20, 2013 Hi.My POTS really kicked in about 3 years ago, but I think I actually had some of the symptoms for a few years before that as well.Oh, by the way I don't quite have a definite diagnosis yet, all the tests I've had done so far show POTS, I'm just waiting to see my cardiologist in December to hopefully get an official diagnosis.Lyla Quote Link to comment Share on other sites More sharing options...
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