Jump to content

New Member Introduction


Recommended Posts

Hi all!

Brand new here, so I wanted to introduce myself to the forum. My name is Alison, and I'm a 29 year old female from Texas. I am not officially diagnosed yet, but am hopefully on the path. I have been having strange symptoms for about 5 years now.

I have a heart rate monitor, and regularly keep track of my heart rate. I was diagnosed with SVT years ago, and had a cardiac ablation in August of 2011.

Upon standing, my heart rate regularly increases anywhere from 40-50 bpm. I get lightheaded, brain fog, nausea, shaky feeling, and my legs feel very heavy and weak. These symptoms do not go away until I sit back down.

I also have GI symptoms that have been steadily increasing over the years. The biggest one that bothers me is the early satiety and lack of appetite. I can go all day without eating, and not feel one hunger pang, when I finally do start to feel hungry, I take a few bites and then feel so full that I am uncomfortable. I have acid reflux, and alternate between constipation and diarrhea. Sometimes, when I am trying to have a bm, my stomach will cramp horribly and I get bad chills and break out in a whole body sweat. I also get the hiccups all the time, but, I don't know if that is related or not.

I also seem to have problems with regulating my body's tempature. I have night sweats, and sometimes my body will get so unbelievably cold (even in the middle of our insane Texas summers) that I start to shiver, teeth chatter, and get goosebumps. My husband jokingly calls these my "cold flashes" because they will come out of the blue.

I have other symptoms that I am dealing with as well! but the ones I have mentioned, along with the almost debilitating fatigue I experience on a daily basis, bother me the most.

I do not have an official diagnosis yet, because I am uninsured and can't afford the doctors visits and test fees. My husband recently found work at a company that offers benefits, but they do not pay any portion of the spouse's insurance, so we cannot afford to add me onto his policy. I am hoping that I will be able to get my own coverage through the healthcare marketplace, so that come January, I will be insured. I can't begin to describe how frustrating it is to be so ill that it's hard to function in day to day life, but not be able to afford care. I am also a stay at home mom with 2 very active young boys that depend on me. I use what strength and energy I do have to make sure they are taken care of, but that usually means there is little left over to take care of myself.

I have increased my fluids and electrolytes, and I get in a 10 minute daily walk to pick my oldest up from the bus stop after school each day. Other than that, I have not found any other lifestyle changes I can make without seeing a doctor first.

I am so happy to have found this forum. The information offered here is invaluable, and it sure is nice to have other people to talk to who understand what I am going through, and don't think I am just "being lazy" or a hypochondriac.

I look forward to getting to know you all on this journey!

Love to all,

~ Alison

Link to post
Share on other sites

Alison,

Glad you found this forum. It has been my saving grace over these last few years. I'm so sorry to hear that you are going through this and hope that some alternative can be found so that you can get a diagnosis and treatment sooner rather than later.

You will find lots of useful information as well as some of the most compassionate and caring encouragers I've come across on this forum :)

Just wanted to let you know that you are not alone. Your symptoms sound quite similar to mine. You will find many others on here that are in the same boat (unfortunate, but good at the same time).

Wishing you the best!

Bebe

Link to post
Share on other sites

Sorry your feeling this way. I know exactly how it feels I am a 30 year old with 2 kids too, struggling to get through everyday with dysautonomia, mine has greatly effected my gi tract and have a feedibg tube in my jeujenum.

I have learned to take breaks all day cant make any plans because I never now how I am gonna feel

hoping to be able to take my kids trick or treating today but cant due to some sort of infection and in the hospital hoping to get out tomorow.

Accepting my limitations had been the hardest part, take it a day at a time enjoy the moments you can with your family.

Link to post
Share on other sites

Hi Allison,

Welcome to the forum. So sorry to hear that you are going through all this. Hopefully you will be able to get to a doctor soon that can treat. On the dinet front web page, you will find a list of specialist. I believe there are some in the Dallas area. Take your time and talk to other people before you chose one to go see. There is lots of information on the forum. Keep up with the walking. Exercise does help you feel better. Listen to your body and try not to over do it.

Rachel

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...