Guest Alex Posted October 10, 2013 Report Share Posted October 10, 2013 Some of you may remember the discussions about CCSVI as being a possible cause for dysautonomia (the Driscoll theory) as well as the surgical treatment Dr Michael Arata tried promoting as a "cure" for POTS/dysautonomia. This was in the news today:http://ca.news.yahoo.com/study-debunks-ccsvi-narrowed-neck-veins-found-people-223100123.htmlApparently the study questions the very existence of CCSVI.Alex Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 12, 2013 Report Share Posted October 12, 2013 Alex,http://www.synergyhealthconcepts.com/ccsvi-3/#!prettyphoto/0/This is where I started when researching the procedure. After about an hour of research, I found an article in the nypost .. (I cant find it now, sorry), but it mentions the largest study on this procedure being completed by a physician named Dr. Zobivinov. Are you familiar with him at all?He's literely 10 minutes away from me. My concern is pretty obvious if you research him or know anything about him, he;s an MS expert. Actually, Buffalo has one of the highest MS rates in the country so it doesn't surprise me. Thanks so much for posting this,Sarah Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted October 12, 2013 Report Share Posted October 12, 2013 Sarah,is is dr Zamboni you're referring to?I'll PM you.Alex Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 12, 2013 Report Share Posted October 12, 2013 Okay, thank you!!no, it's actually Dr. Zobivinov. I know Dr. Zamboni as the pioneer. Dr. Zobivinov is a neurologist and focuses on neuroimaging. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 12, 2013 Report Share Posted October 12, 2013 Sorry...its spelled Zivadinov.Brain fog and forgetting to proofread Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted October 12, 2013 Report Share Posted October 12, 2013 found him Never heard of this doctor before. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted October 12, 2013 Report Share Posted October 12, 2013 http://medicalmyths.wordpress.com/2011/01/15/zivadinov-proves-zambonis-ccsvi-does-not-exist/ Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 12, 2013 Report Share Posted October 12, 2013 Well, that settles that!You need to teach me your research strategies, Alex. My curiosity got the best of me (again).I was thinking if the surgery would actually be contraindatory for me considering I seem to respond to vasoconstrictors and not to a vasodilator. With the high numbers in my BP spikes I clearly am every black box warning as to not use these medications but yet I have such improvement. Quote Link to comment Share on other sites More sharing options...
krystal Posted November 2, 2013 Report Share Posted November 2, 2013 Has anyone with pots ever had this surgery? Quote Link to comment Share on other sites More sharing options...
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