andybonse Posted September 6, 2013 Report Share Posted September 6, 2013 Hey guys,What meds are you on specifically for POTS?I have been reading a lot into my causes and mine is due to slack blood vessels from eds type 3, so for me Midodrine etc would be a good drug, im still going through testing before using it though.- Are there anyone who has been treated with medicine and can work full time and live a normal(more or less) life?I'm hoping my treatment plan might go as follows:Midodrine to control the slack vessels and pooling blood = more blood returning up = less tachycardia and light headedness, depending on relief dosage will obviously need to be worked out.Possibly adding Florinef to Midodrine if extra pressure is needed.I suffer from worse symptoms after certain foods like a big mac for example or large meals - possible Octerine added if no relief from the above.Whats your medicines, how do you function with them and what do they do for you? Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 6, 2013 Report Share Posted September 6, 2013 HI, Andy,Hey guys,What meds are you on specifically for POTS? (Keep in mind, im hyper pots) but, I'm on Midodrine, Florinef, Propanolol, Clonidine, H1 + H2 blockers, and Ativan - Are there anyone who has been treated with medicine and can work full time and live a normal(more or less) life? different medication combination combo's. I believe my exercise regimen has helped a great deal and the increase in sodium.. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 7, 2013 Report Share Posted September 7, 2013 -- Quote Link to comment Share on other sites More sharing options...
Christy_D Posted September 7, 2013 Report Share Posted September 7, 2013 Finally after 4.5 years of debilitating symptoms my so is becoming more functional. He has POTS and MCAS. He takes:DoxepinKlonopinPropanonolVitamin DZantac Zyrtec Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted September 7, 2013 Report Share Posted September 7, 2013 I'm taking mestinon and I've recently started IVIG infusions (my current diagnosis is POTS with a low positive ganglionic AChR antibody ). Also I liberally salt my food - I doubt that what I do is considered salt loading though - and I drink around 3 liters of water a day (this amount of water was my norm even before POTS)Meds I have tried in the past to no avail: midodrine, florinef, beta blockers, SSRI's, benzos. I discontinued these one by one because of the side effects and/or because they have actually made my POTS worse.It's a bit early for me to speak of the benefits of the IVIG, but I am hoping it will help.Best of luck in finding the right med combo for you.Alex Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 7, 2013 Report Share Posted September 7, 2013 sorry to hijack real quick, Andy...Andy...I should also let you know I do NOT follow Dr. Levin's exercise plan, however, I do follow my own. The target heart rates aren't as important to me as it is getting up and using my recumbent bike and starting to take small walks. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted September 7, 2013 Report Share Posted September 7, 2013 Sarah,sorry about that, maybe dr #2 will see things from a different perspective. Fingers crossed. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 7, 2013 Report Share Posted September 7, 2013 Thanks Alex,you seem to be to the Science Wiz... would you mind sharing the easiest approach I may be able to take with asking for the mestinon? Or do you think im on the right track? Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted September 7, 2013 Report Share Posted September 7, 2013 Sarah, I'll PM you - I don't want to hijack Andy's thread Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 7, 2013 Report Share Posted September 7, 2013 gotca.. sorry Andy!! Quote Link to comment Share on other sites More sharing options...
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