Guest Hanice Posted August 30, 2013 Report Share Posted August 30, 2013 Does this happen to anyone else? I think I read that that's Chiari related but Im not sure I even qualify to have one. Quote Link to comment Share on other sites More sharing options...
Hope Posted August 30, 2013 Report Share Posted August 30, 2013 Not my whole face, but in spots it can be numb. I've had MRI's and CAT scans, I don't think I have a Chiari. I think for me it's just a circulation problem. I wake up with other parts of my body numb too. Of course it comes when my other symptoms are worse. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted August 31, 2013 Report Share Posted August 31, 2013 When I'm laying on my back for too long, my hands get numb too. Quote Link to comment Share on other sites More sharing options...
seattle chris Posted August 31, 2013 Report Share Posted August 31, 2013 I have woken up with my head and/or jaw numb. It goes away once I am awake for a few seconds but it is a real eerie feeling. Mayo recently ruled out any neurological issues but didn't have an answer for this other than suspect it could be sleep apnea related (which I am diagnosed with). Quote Link to comment Share on other sites More sharing options...
issie Posted August 31, 2013 Report Share Posted August 31, 2013 It also can happen when you have a MCAS attack. Issie Quote Link to comment Share on other sites More sharing options...
okiedokie123 Posted August 31, 2013 Report Share Posted August 31, 2013 Issie is correct, numbness anywhere from the extremities to your face is a sign of MCAS. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted August 31, 2013 Report Share Posted August 31, 2013 Hmmn.. I didn't know that! Thank you both. I am borderline Chiari but I have a lot of MCAS symptoms too. Thank you I will tell my pots doctor (haven't seen him yet but have a September appointment).. Is mcas dangerous? Quote Link to comment Share on other sites More sharing options...
Akgirl Posted August 31, 2013 Report Share Posted August 31, 2013 I have tingling and numbness on my hands face head. Especially my lips checks. I just assumed it was lack of 02. Or medicine side effect? Also I have noticed that any part of my body will (fall asleep) way way faster than normal. I mean you know when you get pins and needles from sitting weird or whatever. I get this very very easily. It's very annoying Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 1, 2013 Report Share Posted September 1, 2013 Akgirl do you know if you dont or do have Chiari? Quote Link to comment Share on other sites More sharing options...
Akgirl Posted September 2, 2013 Report Share Posted September 2, 2013 I don't! I got a MRI and a cat scan with and without dye when I first got sick and they said everything looked totally normal. Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 3, 2013 Report Share Posted September 3, 2013 I get this a lot and figured it was likely the MCAS and EDS.....but my autonomic specialist said chronic dehydration and salt loss could also be the cause...... haven't really figured it out yet.....I know its not life threatening but its sure is annoying! Now I have started getting numbness and pins and needles in my fingertips Bren Quote Link to comment Share on other sites More sharing options...
Akgirl Posted September 4, 2013 Report Share Posted September 4, 2013 I have been thinking about this, do you think it could be that we are hyperventilating? Quote Link to comment Share on other sites More sharing options...
lissy Posted September 4, 2013 Report Share Posted September 4, 2013 What about silent migraine or pinched nerve in neck/ shoulder area ? Quote Link to comment Share on other sites More sharing options...
Akgirl Posted September 5, 2013 Report Share Posted September 5, 2013 Can migraines cause numbness in the face? I always think of them cause flashing lights etc. hmmm?? Definantly could be!! I always have headaches!! Quote Link to comment Share on other sites More sharing options...
Agreeky Posted September 5, 2013 Report Share Posted September 5, 2013 Akgirl/lissy. I had one neuro tell me my face numbness was due to migraine. Personally, I do not really buy it. Only because my face was on and off tingle and numb during the day for 2 months! I doubt I had that many migraines. I often wonder what I have. Kind off gave up searching. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 5, 2013 Report Share Posted September 5, 2013 Akgirl/lissy. I had one neuro tell me my face numbness was due to migraine. Personally, I do not really buy it. Only because my face was on and off tingle and numb during the day for 2 months! I doubt I had that many migraines. I often wonder what I have. Kind off gave up searching.AgreekyI remember you saying that you get muscle spams on your toung and everywhere. Have you ever tried magnesium? How are your potassium levels and vitamin d? Quote Link to comment Share on other sites More sharing options...
gertie Posted September 5, 2013 Report Share Posted September 5, 2013 I get facial numbness with migraines usually on one side. It's very scary because I'm always afraid I'm having a stroke since people who have migraines are more likely to have strokes. Quote Link to comment Share on other sites More sharing options...
Agreeky Posted September 5, 2013 Report Share Posted September 5, 2013 Hanice I did have low Viatamin D for a while but now it is normal again. I never been told my other levels were off. No I have never tried it, I would be willing to try it though. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 5, 2013 Report Share Posted September 5, 2013 Because I started taking magnesium and it helped immensely! I still have some spasms but not as bad as before. I also had them on my toung like you, I dont anymore. Btw, I would NEVER wait for doctors to give me ALL the results. I have experienced going to doctor's offices and them telling me everything came back 100% perfect, then.... when I actually ASK for my records, its a completely different story. High cholesterol, low potassium, low vitamin d. I have learned to ask for all my papers and disks.I also read that low magnesium causes low potassium. Any slight electrolyte imbalance can cause a domino affect, since they are all correlated. I also learned that calcium is actually an electrolyte! :-O Quote Link to comment Share on other sites More sharing options...
Agreeky Posted September 6, 2013 Report Share Posted September 6, 2013 O yes I know. I have a huge envelope of all my testing! They neglect to tell you so many things it is crazy... Quote Link to comment Share on other sites More sharing options...
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