Gemma Posted August 15, 2013 Report Share Posted August 15, 2013 Hi, has anyone been to cleveland clinic for dysautonomia. I have appointment and do not know if it is worth going or not. Thank you. Quote Link to comment Share on other sites More sharing options...
trice125 Posted August 16, 2013 Report Share Posted August 16, 2013 I have but didn't find them very helpful. PM me if you have specific questions. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted August 17, 2013 Report Share Posted August 17, 2013 HI Gemma,earlier this week there was a post titled, "CC or Dr. Bletshyn in NY" Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted August 17, 2013 Report Share Posted August 17, 2013 gemma didn't realize that you originally posted the CC or Dr B. post. sorry for repeating myself. Quote Link to comment Share on other sites More sharing options...
Gemma Posted August 17, 2013 Author Report Share Posted August 17, 2013 Thanks a lot Sarah Quote Link to comment Share on other sites More sharing options...
seattle chris Posted August 19, 2013 Report Share Posted August 19, 2013 I went there a few times. Dr. Jaeger is very knowledgeable but it is a lengthy process to set up an appointment, followed by testing and results. The blood volume/hemodynamic test yielded some useful results. Likewise, send me a message if you have specific questions. Quote Link to comment Share on other sites More sharing options...
Gemma Posted August 19, 2013 Author Report Share Posted August 19, 2013 Thanks Chris. I will try to get appointment with Dr. Jaeger. For now i am going to see Dr. Blitshteyn this friday. Thanks everyone. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted August 28, 2013 Report Share Posted August 28, 2013 Gemma...are you currently in buffalo? or did you already see dr. blistheyn? Shes right in my backyard but Ive never gone to see her. curious to hear of your experience if you wouldn't mind sharing!!! thank you!sarah Quote Link to comment Share on other sites More sharing options...
Gemma Posted August 28, 2013 Author Report Share Posted August 28, 2013 Hi Sarah. No I live in Philadelphia and had to travel to see her. She seems like a very knowledgable doctor, but its a little inconvenient for me because i live so far. She does phone consults for patients that live far but they are not covered by insurance and 1/2 hour cost $150, which I don't think I can afford with all my other medical bills. Honestly I didn't find anything new from the visit. I will pm you. Quote Link to comment Share on other sites More sharing options...
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