Jump to content

Bedridden For A Year++ Pure Autonomic Failure-Getting Worse Month By Month


Recommended Posts

Hi Melanie,

I'm sorry you're experiencing this but am so glad you saw an expert at Mayo. I think you're in good hands on that front.

Hang in there, we don't know what the future holds and the next 'new thing' may be just right for you. One lady on this forum was very ill with pots and is now getting ready to run a marathon!

Keep hoping and coping...Sounds like you're a tough gal, and I'm glad you're able to see the silver lining in each day.

I'll be sending good thoughts your way.

Best,

K

Link to post
Share on other sites

Its an incredible challenge and as they say even more mentally than physically if thats possible.

My assurance comes from 1cor 15 and ephesians 2.

A couple of books that have helped me are "grace grows best in winter" from amazon and "graduation to glory" by cs lovett.

I pray you can keep your heartbeat up and steady because bradycardia can certainly weaken you. Promise us you

will stay active and positive and be around loved ones.

Link to post
Share on other sites
  • 2 weeks later...

Speaking of books, there is a book you can google online called "grace grows best in winter".

The book by Margaret Clarkson literally saved my sanity the first two years after sudden onset.

I read the whole book a few times, but then when times got rough i would read one chapter at a time.

Every word in the book goes right to the heart of chronic illness and discovering a way to deal with it second by second.

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...