Im So Bummed I Got My Results Back

[Guest Hanice]

My two 24 hr urine catches came back negative :-(

I was hoping that would be it, that it would just be a benign pheo that could easily be surgically removed and that that would just end all these horrible symptoms. I dont know what to do now.... I want a torso mri done so bad.. I feel like they would know what was causing this with a simple mri! I need to find the answer to my illness. But I dont know where else to go from here. Unfortunately I never had a doc to guide me, I'VE done all the research I'VE decided what doctor to visit.. Im lost

[bebe127]

Hanice,

So sorry to hear that no real answers were revealed, but still glad in a way, if that makes any sense. Navigating this illness is like navigating a mine field. I've had trouble finding dr.s in my area as well, but do have a few names. We live in the same area and you can pm me if you'd like the names and numbers. I haven't had a chance to see any of these dr.s, they were suggested by either my insurance or a friend who has a daughter with dys. Since now I'm dealing with my hubby's troubles and my daughter's to boot (still need to contact her cardio), my situation has been put on the back burner for now.

PM me if you want to chat.

Keep on keeping on

Bebe

[Chaos]

Welcome to world of "do it yourself" medicine. That's what I've been practicing for the past 4 years.

Sorry you didn't get an answer this time around. Keep searching and hopefully you will next time. It's always disappointing and frustrating every time we get a negative response when we had our hopes pinned on some doctor or test result. I know I've "sworn off" doctors for periods of time, but then I get a second wind and go back to searching again.

Hugs!