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Ernie
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Sorry Ernie,there is no wonderful unknown autonomic doc hiding out in the bush here ..I was referring to Dr Schondorf in Montreal . I know from conversations I had with you some years ago that you did not have a good experience with this particular Dr. In all fairness I was happy with the testing and his advice which has proved to be very accurate. However his follow up is poor and for the past few years I prefer to be followed by Dr Mathias in the UK

I recently became aware that Dr John Stewart has relocated to Vancouver from Montreal..Did you ever try him?I saw him a few months ago and plan on seeing him again soon but to be honest I think I have nothing new to learn or try. My Pots is pretty straightforward and with time is getting slowly ...very slowly...better.

Like you I have had to pay out of my own pocket and go out of Canada to get

the top quality care and follow up.

Margaret

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Hi Margeret,

Thank you very much for taking the time to answer my post. You are right. I had a bad experience with Dr S as he diagnosed me with Munchaussen and because of him I could no longer get medical help in the Montreal area. He is the reason why I had to go to the States to get the proper diagnosis.

I have seen Dr Stewart once. He was referred to me by Dr Grubb. Dr Stewart said I was a too difficult case for him, he did not want to learn more to help me out and he would need to invest too much time in my case. So he referred me back to Dr S, who had diagnosed me with the Munchassaussen a year before and had blocked my medical file.

Shorthly after I was accepted at NIH which was a real god send gift for me. I finally got the proof from Dr Goldstein that I am physically sick and now I am starting to have some medical care in the Montreal area.

Understandably I don't want to go back to a doctor who thinks I am poisoning myself to get medical attention.

I asked my government to pay for Dr Grubb because no specialist in Quebec (that I ghave one so far) knows what to do with my case (even if I am diagnosed now). The government said that we have good specialists here. I have still not found the one yet. Personally I don't believe there is any. It is just a cope out for the government.

Have you had your testing done by prof Mathias? or did he take the results from the Montreal testing and treat you with these?

I am very appreciative of what Dr Goldstein did for me because otherwise I would not see the light at the end of the tunnel. I hope that one day we will have someone like him and Dr Grubb in Canada.

Ernie

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  • 2 weeks later...

Hi

I have an unusual idea to suggest. Some doctors will see patients without insurance and will arrange a payment plan for you to slowly pay the bill. Some doctors will even reduce the bill due to financial hardship. I realize you must have insurance through Canada, but to Dr. Grubb it would be like seeing someone without insurance coverage. I wonder if Dr. Grubb might consider that? I don't know him.

Karyn

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Hi Karyn,

Thanks for your suggestion.

We have social medical health care in Canada but they only give me 50$ for Dr Grubb's visit and it costs me 2,000$ t of pocket ouincluding transportation and hotel.

It may sound stupid but I know Dr Grubb gives a lot of himself to people and even if I don't have much money (it will be 3 years since I last saw him because I had to wait until I saved enough to go back) I feel that if I asked him to lower his price it would be like telling him that he is not working hard enough or that I don't appreciate what he does. So I prefer to wait and save.

I have an appointment with him in August and I am very eager to go back. He is such a wonderful person.

Ernie

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Hi Ernie,

Your thoughtfulness does not sound stupid at all. I would never ask a doctor to lower the price of the visit either. However, sometimes a physician's office will spontaneously adjust the cost for someone.

Being a doctor is just way too demanding and complicated to JUST be in it for the money. I could not resist adding that thought.

Dr. Grubb sounds wonderful. I would like to meet him someday. Good luck to you. It sounds like saving for a visit with him is well worth it.

Karyn

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Ernie

I agree with you and Karyn both. I would also feel strangely about asking him for charity care but he's also the most good hearted person that I have ever met and he would do anything for his patients. I don't know enough good words to say about Dr. Grubb accept that he's one in a billion. I wish that every doctor could be as good hearted, caring and intelligent as Dr. Grubb.

It's worth your time and effort to just call and talk to the girls in the office about this situation that your in. It might save you 3 years of complete frustration and symptoms.

Steph

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