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I haven't been on here for a long time, maybe about nine months. I was doing much better with the Ritalin and making sure that I went out and engaged in activities. I still needed rest during the day and needed to pace myself but I was doing much better.

Anyway, recently my lumbar stenosis started getting worse and I am in extreme pain and can barely walk. My pain management doctor told me a year and a half ago to see a surgeon but I didn't want to have surgery, so we managed the condition with nerve block shots. Recently they haven't been helping much. Anyway I no longer liked that pain management doctor (for reasons I do not want to discuss in the open forum), I switched to another and he also said looking at my MRI that the stenosis is severe, He will do another shot in three places but he wants me to get another MRI and then possibly see a surgeon. The new shot is Monday and it can't come soon enough. The pain is increasing my dysautonomia symptoms, dizziness, rapid change in heart rate and blood pressure and blurry vision as well as low stamina and exhaustion. Of course, the heat exacerbates my symptoms.

In addition to that I had a mammogram and they found a small nodule. I had it biopsied and will have the results in three to five days.

So when it rains it pours.

That's my update. If you remember me please respond or even if you are new or don't remember me, please respond. I need all of the support I can get.

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I remember you. :) I'm glad you had a period of doing better, but am sorry to hear you're back in a slump. I wonder if the exacerbation of dysautonomia symptoms is directly related to the back problem or is it just a dysfunctional ANS responding inappropriately to a physical stressor or could it be related to the shots? Just thinking - don't expect an answer. I just went through a few bad days with my back, could NOT stand up straight for 2 days and was walking around hunched over like a little old lady. It's not fun. :( I hope you're out of pain soon and that all the other symptoms calm down as well. (((BIG hug)))

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Thanks Naomi

I think the pain, the heat and the stress exacerbated the dysautonomia. That's my hunch.

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Hang in there. So sorry you are going through this but the good thing is that you had a period of time that you were functioning and getting something out of life. Never forget that time because it can serve as a motivator to get through the rougher times. Sounds like you have found a good doctor that you can trust. That makes all the difference in the world. Take care of yourself and give yourself permission to rest as much as possible. Extra stress with dystonia does not mix well. Take care and keep us posted.

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Hi

Just wanted to say your post is inspiring . Especially about effort to get out.

Am sorry about your back issue, admire your strength. Not easy to deal with pain

Hopng only the best from biopsy results too.

Keep strong !!

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Hi there! It's always nice to hear from members that have been away for a bit but I wish it was under different circumstances. My positive thoughts are with you. Let us know how things progress.

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The breast biopsy was positive for cancer. Now I have to have a staging MRI and an estrogen/ progesterone receptor test.

Shot for stenosis and MRI for breast are on Monday.

I will see the breast surgeon and will know more next Wednesday.

Thanks for your kind thoughts. Will post when I know more.

Lynne

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Hi Lynne, I remember you! So So SO sorry you have reason to be back here. Glad to hear you had 9 months of doing better, but sometimes that just makes these remissions into the depths of dysautonomia that much more painful it seems. And now you get to add a whole new adventure onto the other challenges you are already facing, When it rains it pours is right!!

Hoping and praying that all the staging and other tests come back in the best form that they can.

Sending lots of HUGS your way!!

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So sorry to hear the news. My thoughts and prayers are with you. Take care, be strong, and fight. So thankful to hear that you have a doctor that's on top of your problems. Keep us posted.

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Hi Lynn,

I'm so very sorry for all you are going through. I will be thinking of you and keeping you in my prayers. Hang in there and don't let go of your fighting spirit. Keep us posted on your progress.

Janet

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So so very sorry you have to be going through this, take care sending you positive energy.

Anna

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