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sisblostg

Muscle Tension Dysphonia ? Can't Get My Voice Back? Connection To Pots/eds

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I have had a hoarse voice on and off since December. I had a chronic sinus issues and an unknown viral infection during that timeframe so I blamed my voice issues on that. About 6 weeks ago it felt like someone had hit me in the neck(like when you sit next to a toddler and they hit you in the neck with a toy by accident). It felt weird to swallow sometimes on the outside of my neck and I was losing my voice easily. I could not wear turtleneck anymore(and 3/4 of my wardrobe is turtlenecks due to my neck feeling cold all the time). I had my thyroid check and some basic bloodwork, all fine. I went to the ENT and had that flexible tube down my nose and the doctor said it was muscle tension dysphonia. I saw a speech therapist for a consult who agreed but was concerned that overall my muscles are weak, especially my neck and upper body(I knew that because I certainly have had a bad year healthwise & have slacked on PT, cardiac rehab).

Is there a connection with muscle tension dysphonia and POTS or EDS? This is one of those things, losing my voice that I just can't believe happens after I have accepted my limitations on being able to walk and travel and now I can't talk on the phone? If anyone else has had this, has speech worked? massage? any meds?

On the positive in the past I was never able to go through with the ENT putting the scope down my nose into my throat. I realized this time it was not the scope but that smelly horrible numbing spray they put in your throat and nose. I had it done without the spray and it was not bad at all. Afterwords it felt like a mild cold for a few hours but nothing compared horrible side effects of the numbing spray I had in the past.

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I don't know if there is a connection or not but my son has trouble with a hoarse voice. He never had this trouble until he got sick with a virus and was then diagnosed with POTS. However, my son was diagnosed with vocal cord dysfunction and a vocal tic before he got sick with POTS. He does not have trouble with the vocal cord dysfunction because he has been to a speech pathologist. She taught him breathing exercise to make the vocal cord dysfunction stop. So he no longer has trouble making it stop. If his vocal tic gets started, it makes his throat very sore. However, his hoarse voice comes and goes. so I'm not sure if it's caused by the vocal tic or a weak nerve or muscle in neck.

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I went to a specialist today. Lets call it my POTS/EDS posture voice was horrible. It was quite interesting to see how much better my voice got sitting straight up and using more energy. Of course I sure do not have extra energy! I don't think the constant acid beverages help either, my morning prune or apple juice and then lots of powerade all day doesn't help. I guess this is a common condition for those that are bedridden, have poor posture, don't eat meals sitting up, and those with other weak muscles.

I never thought speech would be painful, but the treatment for this hurts more then cardiac rehab!

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Have you been checked for hypothyroidism or low magnesium levels? I have been reading up on some autoimmune diseases. I goggled low magnesium and came across this condition. A horse voice can be part of this condition.

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