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Aimes

Eating Habits

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Janet, I actually really enjoyed going to Mayo Scottsdale. I'm so glad I started my journey at Rochester because there really is no comparison. It's a well-oiled machine. I started with a cardiologist and left with an entire team of specialists. But, Scottsdale was a much more laid-back atmosphere. More of a small-town clinic feel and I am so lucky to have Dr. Goodman on my side! It was great to have a "vacation" with my husband and he had some family down there so it was fun to see them. Good luck with your Gluten-free diet. I'm not completely gluten-free but always notice I feel better when I avoid it. I also agree about the alcohol. I can't tolerate it now which is unfortunate. I was never a heavy drinker but did enjoy some wine or beer every now and then. Now, I just have a sip of my husband's to satisfy the craving.

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I also have gastroparesis and colonic inertia. My diet is mostly liquids. I drink Boost ( can't do dairy, soy milk, rice milk, coconut milk...all caused pain). I mix in some PowerAde too. I can get by with some baked potatoes and peanut butter crackers at times. And when I am feeling really wild a can of chicken noodle soup. My diet is mainly a diet to keep me off feeding tubes. I am losing weight still but not too fast. I have found that a liquid diet is best for me. I don't tend to have as much pain or nausea. But I can end up on the floor in pain even on all liquids. They joys of gastroparesis. And thanks to a colon that barely works anymore I need to stay with a mostly liquid diet or else things don't move along very well and have to use large amounts of miralax ( dr.'s orders ). And to add to my wonderful mix of problems, due to a bladder that is losing it's functions, dr. said no caffine or carbonated drinks.

My diet is pretty simple but boring. I will take it though over feeding tubes. Have many friends that need feeding tubes to stay alive. Those tubes get infections so easily, scares me.

I do enjoy lollipops though, I get those wonderful Gourmet Lollipops, cotton candy flavor. I can have these on days that I am needing sugar for my hypoglycemia or on days that I am a little hungry and don't need to eat or feel too full to drink.

Life is full of fun things, isn't it? ;)

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Sheila,

My diet is bad due to food intolerances containing salicylates, amines and glutens, colours (natural and artificial) preservative etc. There aren't a lot of healthy foods I can eat. For example - peeled pears are the only fruit I can tolerate. There's about half a dozen types of vegetables I can eat. And I also have severe colonic inertia problems. Which means, for me, anything high fibre makes things worse and I too can end up on the floor in intense pain for an hour or so trying to breath through the pain. Staying away from fibre has greatly lessened the pain. I live mostly off a dairy diet, some wheat and some meat (cooked pretty plain). As my diet consists now of a lot of high fat dairy I've gone from being underweight to being significantly overweight. I can eat sugar and do.

If I break away from this diet -- which I do sometimes because I just get plain resentful and tired of it and crave something like a tomato or an avocado -- I will pay for it. With painful skin reactions. But I never try to eat foods with much fibre because the pain in my gut gets too great.

You have my sympathy. And I feel I do 'get' what you are going through even though I can eat some solid foods. Although all that homemade icecream -- which soothes my guts and lifts my mood (all that sugar and fat combined soothes boosts chemicals that sooth the mind and thus the 'second' brain - the gut) has certainly packed on the pounds.

I'm off to a gi doc appointment this Tuesday. I'm not controlling the 'constipation' very well at all. Not from lack of trying.

blue

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I can tolerate a little alcohol but not sulfites/sulfates....so never any red wine. I flare immediately with condiments, anything pickled, soy sauce....etc. Maybe some of you are also sulfite sensitive?

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Carrie -- thanks for that interesting link.

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