Jump to content

Falling/collapsing Without Losing Consciousness


yogini
 Share

Recommended Posts

I usually lose consciousness, however there are times where I don't quite lose full consciousness but still lose muscle tone and fall. I assume that is what you mean. My vision usually narrows when that happens but I don't go out completely.

Link to comment
Share on other sites

This happens to my son when his blood pressure gets too low or when he has been outside too long in the warmer weather. He has not fainted but he looks pretty pale before it happens. Last summer, he could feel it coming on and was able to give me some type of warning before it happened.

Link to comment
Share on other sites

I faint, although much less often now that I am more familiar with the warning signs. Other times I am very tachycardic and my legs just give out. I must fall in a similar way each time because I end up with bruises in the same spot. Sometimes I will fall completely to the ground and other times I make it to my knees and get stuck in sitting. During tachy episodes my muscles tend to go rigid so it’s very hard to move out of whatever position I land in. Sometimes I am aware of the entire episode and other times I have patchy awareness. It just depends on how severe the episode is.

Link to comment
Share on other sites

Yogini

This used to happen to me way back when I still exercised - I would slump over about 90 minutes afterwards, but remain completely conscious. Eventually, it was found that my blood pressure was collapsing during my 'slumps', then recovering after 4-5 minutes. More recently, a geneticist has suggested that it is caused by a rare neuromuscular disease that sees sudden changes in my potassium levels - something called periodic hyperkalemic or hypokalemic paralysis. The sudden changes in potassium levels are brought on by a few different things, including resting after exercise.

Dianne

Link to comment
Share on other sites

  • 3 months later...

@Mytwogirlsrox - I believe I have cataplexy.I didn't know that was the name for it until recently when it started happening again while walking and I found it on google. Its happend now 3x in one week. Its very frightening as I don't have any other symptoms occurring at the time (ie the tachycardia of Pots is under control now and my brain fog issues are intermittent, but hypotension is chronic issue).

I've had full out collapses to the ground , but always conscious and the 'feeling' differs for the presyncope I'd experience with POTS. Other times I don't collapse but instead my walking turns into an extremely slow, almost Parkinsonian type of walk and I must shuffle to get back to the house from a short walk. But then yesterday, I just STOPPED suddenly, dead in my tracks, and stood still for a few minutes very conscious of what was happening but couldn't get my legs to step forward. I fear MS but have told I have no brain lesions to support that. Have also wondered about myasthenia gravis but don't seem to have enough symptoms for it to be that either.

do you or anybody here know much about what might be going on with symptoms such as what I've described? Could hypoxia from low blood pressure cause symptoms that severe?

dx POTS 18 months ago; waiting for my app't re : dx of EDS and MCAS. I am not sleepy during day so doubtful of narclepsy although I do have other sleeping issues.

any insight would be appreciated.

Link to comment
Share on other sites

Oh yeah - down I go - fully awake and aware that my blood pressure is quite low. During my tilt table test, my BP dropped to 40 systolic and my heart rate was 20 and I was still conscious - barely but, I remember everything! I know I can still walk around with a systolic BP of 60 - I think we develop a tolerance to the low BP more so than people who never have low BP then drop with it suddenly: they wilt and we just get fuzzy-brained!

Link to comment
Share on other sites

I have my knees buckle every once in a while with an attack of presyncope but I stay conscious. Separately, I am concerned I have cataplexy. I have already been diagnosed with daytime hypersomnia. I go to the new sleep doc next week for my second appt and am going to describe to her what happens to me and see if that fits cataplexy. I suddenly become so tired I feel like my body is going to collapse if I don't lay down....like I will lose control over my body if I don't heed the warning and lie down and sleep. But it's different than presyncope.

Link to comment
Share on other sites

@Katybug- I don't have the hypersomnia but its strange that I did many years ago when i didn't have the cataplexy! So it seems I've had both disorders but not in the same time frame. Early in my marriage there were times I was sitting at the table and my head would literally drop onto my plate! I would just wake up within a few minutes and carry on with dinner although my husband was finished his by then!

It was so bizarre to us at that time b/c back then there weren't personal computers and no way to do a quick google searches (I'm dating myself). It never caused a problem for me so I didn't go to the doctor but I'm guessing I had narcolepsy.

But what I have going on now resembles the cataplexy without any known triggers (emotion/foods) and without the narcolepsy.

Definitely, for me anyway, it is very much a sudden, intense 'physical weakness' of my legs which is very different than the presyncope which involves intense brain fog and a 'drunk' feeling. I must sit on the ground or shuffle to safety as quick as possible. Not sure what treatment is out there for this, especially when not dx ??

Ha, most of the general public will never experience any of the above but its pretty normal for us with dysautonomia to get so many different and odd symptoms.

Link to comment
Share on other sites

Hi Yogini,

That sounds exactly like cataplexy -- not uncommon with us. It is sort of similar to "fainting goats" (have you ever heard of those?).

Some people have narcolepsy with it, but not all. Do you have any signs of high intracranial pressure (the feeling of fullness in your head, nausea, dizziness, vertigo, sensitivity to sound, light, motion and/or stress, tremors -- worsening with Valsalva (straining), do you get motion-sick easily? All can be signs of slightly increased intracranial pressure. I just wonder if that is the cause of your cataplexy.... :)

Link to comment
Share on other sites

  • 7 years later...

@yogini I get this every time, at first it were terrifying not being able to see,move or do anything, only hear everything round me, and not understand why this were happening. A lot of times I’d hear ppl talk negative about me during a collapse, it were funny cause theyd not know I could hear , their faces were a picture when I tell them after lol..suppose it had it’s upsides. But I’ve had CFS and POTs now since 2014, took years to diagnose, my consultant is still baffled by my stroke like symptoms of my face pre episode though, which is worrying. I’m glad I’m not the only person to collapse and still be conscious though! I always thought it were me just being weird 😖

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...