POTLUCK Posted April 23, 2013 Report Share Posted April 23, 2013 I do not really get to many odd symptoms. I had a lot of them that clearly went with the changes in HR posturally when my HR and symptoms were worse ( i.e. before running ) I still get some palpitations, a little to much racing feeling, which is also a measurably fast HR at times, some dizziness with standing etc. but manageable.Anyways, this new thing started last Saturday. It is intermittent, but always occurs in the same location, the front outside portion of my leg below the knee, and it is a cold feeling. The first day I thought I spilled something wet on my jeans, actually took them off and dried them 40 minutes. I notice it more when something, like the jeans is touching my skin. It is irritating, and almost like pain, as if the leg was to close to the fire at a campsite or had frost burn or something. No idea what to make of it. Quote Link to comment Share on other sites More sharing options...
gackedo Posted April 23, 2013 Report Share Posted April 23, 2013 I have peripheral neuropathy and it feels different in different parts of my body. In my legs it feels like a continuous tingling, pins and needles sensation. In my right arm it feels exactly like ou are describing. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted April 24, 2013 Report Share Posted April 24, 2013 Amazing how I get a weird symptom and someone else here talks about the same thing. I've been having the exact thing on one of my fingers - feels wet, but it isn't and it's a cross between feeling hot and cold, but mostly it burns. I have neuropathy so I assume it's part of that. Have you looked into neuropathy? Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted April 25, 2013 Author Report Share Posted April 25, 2013 It does sound like a neuropathy. It just started and came on abruptly which is strange, but it is not going away so I will probably have to see someone= I would think a neurologist. How do they test or look into in to it. How were you both diagnosed? Quote Link to comment Share on other sites More sharing options...
jkoconne Posted April 25, 2013 Report Share Posted April 25, 2013 I get something similar but not exactly the same. I get that feeling but its on the inside on my leg. Its like a kinked hose was opened and a cold rush runs down the front or back of my lower leg. Its a very unplesant feeling but im getting use to it when it comes. It only comes and goes as it pleases like many of my symptoms Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted April 25, 2013 Report Share Posted April 25, 2013 Large fiber neuropathy can be diagnosed through EMG. My small fiber neuropathy was diagnosed through skin biopsy. Quote Link to comment Share on other sites More sharing options...
E Soskis Posted April 26, 2013 Report Share Posted April 26, 2013 I have Raynaud's phenomena which is associated with dysautonomia and peripheral neuropathy. I get color changes of my hands or feet as well as strange sensations. I just had to quit a walk around the block due to extreme prickling feeling in my hands and feet - they were beet red and pretty painful. I have had occasional sensation of water running across my arm or leg and when I look at it, there is nothing there. I guess it is all dependent upon which nerve pathway is messing up at the time...... Quote Link to comment Share on other sites More sharing options...
Foggy01 Posted April 28, 2013 Report Share Posted April 28, 2013 Yeah I get this. You'll notice a lot of your symptoms are shared by the rest of us at times and you'll be hard pressed to find people outside in the ordinary world that understand. I've heard of you guys mentioning so many things I never thought I'd ever hear anyone else say they experienced. Guess you guys've experienced quite a panoply of things that no one else will understand. Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted May 12, 2013 Author Report Share Posted May 12, 2013 What I wonder is if I should be worried about it. ( I guess in saying that I realize I am worried about it, just losing my faith in medicine/physicians to do anything to help it - almost do not see the point to going and listening to them say they have no idea, and put some psychiatric connotation to it. ) Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted July 9, 2013 Author Report Share Posted July 9, 2013 This comes and goes but has not gotten better, and is still in the same spot and I still do not know what it is. Quote Link to comment Share on other sites More sharing options...
blueskies Posted July 9, 2013 Report Share Posted July 9, 2013 Just about the whole world and their dog know that my skin burns and goes red in face, neck, upperchest, arms and lower legs and feet and mouth for days when I eat certain foods, meds etc. And it can sometimes happen when I've been very strict and careful. And it can be very hard to find clothing that doesn't feel like sandpaper on my skin to wear on those days. Before I found at that all these foods and additives and some meds etc were the culprit I spent weeks sitting in front of a fan with just a very old worn out soft sheet wrapped around me. I sleep with only very light covers on me at night. The warmer I get when I'm asleep the redder my skin will be when I wake up -- unless I wake with bad migraine. I am also treated for chronic migraine but I get breakthrough migraine sometimes that pain killers will not help. I think they are all connected. The first time I experienced the burning feeling was one night waking to feel that both my legs and feet had been placed way too close to an open fire. This lasted about an hour and no one could explain it to me. That was about 11 years ago, probably more. So glad I did not know then what was in store for me. The thing is I have a sister who has bad migraines (2 of us out of 5 sisters) also. And she has experienced cool water feeling running down her legs a couple of times. The first time she was teaching a class and thought she'd wet herself. Excused herself to go to the toilet and found herself to be completely dry. Her doctor and specialists she saw had no answer for her. She lives in Italy so I guess docs haven't a clue there either, sometimes.blue Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted August 14, 2013 Author Report Share Posted August 14, 2013 Another month gone by and this earlier statement still applies."This comes and goes but has not gotten better, and is still in the same spot and I still do not know what it is." Quote Link to comment Share on other sites More sharing options...
jaddico Posted August 14, 2013 Report Share Posted August 14, 2013 Potluck,I have exact same syptoms. It feels like cool mist blowing or running down or next to my leg. . The medical term is dysesthesia. It's related to dysautonomia and neuropathy Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted September 8, 2013 Author Report Share Posted September 8, 2013 This has not been preset for the last week. I am hoping it stays this way-gone. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 8, 2013 Report Share Posted September 8, 2013 I get a cold water dripping feeling in my chest sometimes and I always think water spilled on me but it never is water. I think it must be ans related. Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted October 19, 2013 Author Report Share Posted October 19, 2013 This strange and worry some symptom that went on for some time in a fluctuating pattern went away at the beginning of September and never came back. Quote Link to comment Share on other sites More sharing options...
loot Posted October 21, 2013 Report Share Posted October 21, 2013 Yeah it comes and goes. I had a patch under my left eye for a while, several months ago. Then for ages I had nothing and now I have a cold patch at the front of my right ankle. Quote Link to comment Share on other sites More sharing options...
POTLUCK Posted November 26, 2013 Author Report Share Posted November 26, 2013 Still not back, no idea what it was or why but gone for now. Quote Link to comment Share on other sites More sharing options...
jaddico Posted November 27, 2013 Report Share Posted November 27, 2013 I've had the similiar symptoms wchich comes and goes as well and was recently diagnosed with small fiber neuropathy which can cause what you are describing.."Dyesthesia" Quote Link to comment Share on other sites More sharing options...
Jason Posted April 4, 2020 Report Share Posted April 4, 2020 Look up Arachnoiditis and see if it may be the cause of the wet or cold sensation, bladder issues, numbness, tingling, shooting pain, twitching, sensations of something crawling on the skin, etc. I have a spinal abnormailty and am pretty sure I have Arachnoiditis as a result. Quote Link to comment Share on other sites More sharing options...
deeceet Posted January 18, 2021 Report Share Posted January 18, 2021 First time here. I get patches on my feet, inner thigh, arms and hands that feel like they've been steam burned. I can't walk on a cold floor barefoot when my feet burn because its too painful. I have a spot on my back that feels like its being used to put out cigarettes. Luckily that doesn't migrate like the steam burn feeling. My doctor seems to think I'm crazy. Sorry some of your docs feel the same, and sorry yall go thru this, but I'm glad I found yall Quote Link to comment Share on other sites More sharing options...
Pistol Posted January 19, 2021 Report Share Posted January 19, 2021 @deeceet - welcome to the forum! Thank you for sharing your experience. I do not suffer from paresthesia but my husband does. He gets spots somewhere on his body ( usually legs and arms ) where he feels as if someone pouted cold or hot water on him - but nothing is there. We also have no idea why this happens. Thankfully it never lasts. Quote Link to comment Share on other sites More sharing options...
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