Testing For Muscle Burning ?

[Achilles2323]

What exact test check for whats going on besides ck testing ?

I have a horrible muscle burn in my arms and my legs but i am not sure what the cause might be.

i have had a decent amount of blood and urine test all come back negative.

any 1 have any idea what test to ask for ? maybe something really thorough to check for all kinds of muscle burning and weakness.

by the way i dont work out just walk and do normal things at the moment so its not from any hard work i am doing at the moment

POTS

GERD

GILBERTS SYNDROME

1ST DEGREE AV BLOCK

[Kellysavedbygrace]

One of my top symptoms is a chemical burn in my blood and bones (sometimes skin.). Not so much my muscles unless I have been working out. This feeling/sensation has steadily increased in frequency and occurrence as my condition has progressed. It feels like a chemical burning and is Followed by periods of crashing/ very symptomatic w fatigue, brain fog, hypersensitivity, baldy aches and attenuated tinnitus.

I'm quite confident what is happening in my case is a symptom of mast cell degranulation. This has been confirmed by my mast cell doc. That may be an avenue for you to rule out. Here are a few questions I'd ask:

- do you have symptoms in most or all organ systems?

- are you highly sensitive to medicines, chemicals and fragrances?

- have you ever had flushing? Upper body turns bright red w a chemical burn feeling?

[Achilles2323]

I get flushing every night

Face feels hot

Any clue were a mast cell doctor is in NYC ?

[Kellysavedbygrace]

Not in the city but just an hour or so away at Yale, in CT is:

Philip Askenase, MD, Chief Section of Allergy and Clinical Immunology

Department of Internal Medicine

Yale University School of Medicine

333 Cedar Street

New Haven CT 06520

Email: philip.askenase@yale.edu

Tel 203-785-4143

Fax 203-785-3229

Although I know nothing about him, He sits on the medical advisory board for the Mastocytosis Society and I suspect would be up on proper testing for MCAD.