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I am trying to get into Mayo clinic AZ, and will have a long wait Im sure by how its going. My primary care doc is wonderful and has already ordered a few odd tests I wanted to do meanwhile. I am also going to see a local neurologist and perhaps she too would take some ideas for what to test me for because I am sure she is not an expert in dysautonomia. I hope at least she has heard of it lol.

So, what would be good tests to ask for? Primarily I have POTS over a year, which I had in the past when my Chronic Fatigue Syndrome worsened for some reason (25 years of it) as it is now after a shoulder injury 2 years ago. I am also having flushing during the day and night sweats interrupting my sleep. I think I have some temperature dysregulation. I did just do a histamine test and the urine one also due to the flushing.

Any suggestions for what to test for appreciated! I would like to know more about what is going on so I can consider the proper treatment for it if I want to try medication.

Thanks!

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