Jump to content

The Symptoms We Get From Pots


  

375 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

  • Replies 57
  • Created
  • Last Reply

Top Posters In This Topic

You have fatigue twice. I actually only get night sweats, otherwise I don't sweat much. Some of these symptoms I only get with near syncopes, which doesn't happen often. Others are situational related, like my hands swell if I get hot. My symptoms can get worse with exertion. My fatigue is usually because I already am having symptoms they kind of go together. Less fatigue, less symptoms, or the other way around hard to say. I have lots of different joint and muscle pain. Also have dry eyes, nose, etc.

I'm one of those that get hypertensive on standing. So I get head, neck, and lower body pain when I'm upright. My near syncope/syncopes come on rather sudden without much warning, that is when I get the snow, nausea, ear ringing, pasty/clamy. My bp suddenly is tanking when this happens and I loose my legs, and am down, there usually is some kind of added trigger, motion and heat being some of them.

Link to post
Share on other sites

I am similar to Arizona Girl, many of the same issues. I am also hypertensive and get the head, neck pain (and pressure below sternum). I checked some things that don't happen often, but some do during extremely bad episodes or occasionally. Others are daily or very often. Maybe I should have just checked the main symptoms?

Link to post
Share on other sites

Great list! I'm going to print it out and use it, if you don't mind. Sadly, I can tick off almost all of them :(

Your list is quite comprehensive. The following are some of my symptoms that I didn't notice listed (obviously, your list is not intended to be my list of symptoms :unsure: )Did I miss diarrhea and other GI issues ie: little to no appetite, attic/basement gas, constipation, symptoms worse after large meal? How about weight gain/loss? I know you mentioned hr 130+, how about tachycardia >30bpm or bradycardia? How about reduced libido? Hypotension or Hypertension? Night sweats? Anxiety is a huge one for me, unless "feelings of panic" and "reduced tolerance to stress" on your list are related.

Interesting to see results once more people vote.

Thanks for posting! I for one am going to use this as a logging tool of my symptoms that perhaps can shed some light on triggers or otherwise give much needed info to dr.s in the future.

Bebe

Link to post
Share on other sites

I also had absence of sweating. The list is comprehensive and it made me sad to see all the things I could check. I tried to be conservative and not over think it. Still a lot of checks. But also comforting to know there's people out there that understand and feel the same. It's nice to not be alone. Good luck all

Link to post
Share on other sites

What a great list! I want to print this and flash it every time I have to explain this illness, ha!

I checked probably 3/4 of the symptoms listed.

I agree with above posts, I'd like to see night sweats added. I would also be interested to see how many experience extremely fast HR, like 180+

Link to post
Share on other sites

I think this list is part of the problem with POTS and doctors. When they give you the pamphlet, it should cover all of these. But when doctors hear postural tachycardia, they think it is only heart rate. In fact, the disease name itself is misleading. They should call it ADPOTS. Autonomic Dysfunction Postural Orthostatic Tachycardia Syndrome. I had my doctor move POTS as the primary condition and replace it with autonomic dysfunction...its a much better explanation.

Link to post
Share on other sites

The pads of my feet turn dark blue/purple when I step into a warm bath. I don't stay in the bath for more than a few minutes because my heart starts pounding, but anyway, I do like a quick bath. I never see any purple on my hands. A year prior to POTS, I was tested for Reynauds, which came back negative. Would this situation qualify as veinus pooling? I forgot to ask my POTS doc.

Link to post
Share on other sites

What about difficulty regulating temperature, dry skin, and dry hair/hair loss?

Link to post
Share on other sites

What a great list! I want to print this and flash it every time I have to explain this illness, ha!

I checked probably 3/4 of the symptoms listed.

I agree with above posts, I'd like to see night sweats added. I would also be interested to see how many experience extremely fast HR, like 180+

Link to post
Share on other sites

I'm surprised at how varied, yet uniform the responses are.

In addition to the symptoms, I'd love to see this broken out some way, some how (I'll have to think on this) with how often people experience each symptom. 30% get syncope, but I'd love to know how often. It's one thing to pass out occasionally; it's another to pass out multiple times a day.

Still, very interesting.

Link to post
Share on other sites
  • 3 weeks later...

Not really a missed symptom but how many are hyperpots. And if they have another condition like eds or fibromyalgia etc. But real good list. First time I actually saw all my symptoms grouped in on large list. Kinda surprising to go down the list checking off so many.

Link to post
Share on other sites

It is quite sad to think about when ticking off most of the boxes. FYI, I've used this list and the lists I've found online including the one found on Dinet.org to make a chart of my symptoms. I have five columns based on frequency: Always (Daily), Frequently (4-6x/week), Sometimes (1-3x/week), Rarely/Never, and Don't Know. It is my hope that I can take this to the dr. and show him more precisely what I'm experiencing without having them ask and me having to spend thirty minutes going over all my symptoms; plus, this doesn't leave anything out so I don't have to remember everything or worry about forgetting to mention something.

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...