Jump to content

First Day At Mayo


Recommended Posts

Hi All, just a quick update: Mayo is great. Amazing how quick things are happening. Really liked Dr Goodman. He is very quite, and listened very attentively. When I started the day, I was only scheduled to see the Dr, but ended up being there 6 hrs. Had labs, pulmonary, and EMG studies. Pulse ox all night, and 24 hr unine to start tomarrow am. More tests starting at 7:45am, which means carrying around urine jug all day-----yuk. Extremely tired, but so glad to be here. Thank goodness they have a special rm that is dark and filled with reclining chair, so was able to get a nap in between some tests.

Today the temp here in Az was 81, and only 25 back home......added perk!! Blessing to All

Link to comment
Share on other sites

I really like Dr. Goodman too! Sorry you have to carry the urine around all day. I do love how efficient they are with scheduling things. They try really hard to get everything as close together as they can.

Good luck this week! I'll be watching for updates :)

Link to comment
Share on other sites

I went there last May and also saw Dr. Goodman. Had a wonderful experience and really liked everyone there. LOL azmusiclover, too funny :D

Hope you get some answers mydoggielovesme2!

Link to comment
Share on other sites

Hi Again, well had the autonomic tests today. ARS, RSD and one other not sure what it was called, but had to do with breathing and heart rate. Then had holter monitor put on to wear 24 hr. So glad it was a shorter day, those tests did me in. Came back to RV and slept rest of the day. Some of my labs are coming back, not sure what most of the are, but negative for Lyme and typase syrum ok also. Tomarrow only have to return holter and 24 hr urine. Yea, a day to enjoy Phoenix. Thursday having Plasma Catecholamine test in am the going to the Phoenix Mayo campus for heart test in pm.

Thanks for all the well wishes everyone, your support in great and very much appreciated.

As for Dr Goodman.....I'll leave that debate for you younger girls. Haha

Link to comment
Share on other sites

I'm close to the Mayo hospital if you felt up to meeting for dinner or late afternoon snack/beverage. Their cafeteria isn't bad if you didn't want to go off "campus" Maybe some of the other N Phx/AZ girls would be able to join? I can send you my phone number privately if you want to meet up!

Link to comment
Share on other sites

Glad things are going well so far for you. It's been a nice week weather wise here for you.

Hopefully, your answers will come soon. You do know you can daily pick up your results. That way you can review each day as things come in and then if you have questions ---start a list.

Issie

Link to comment
Share on other sites

About results- this is how awesome they are... I have an online patient account, and as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing. I had a couple of questions about my blood work while I was in the ER and it was answered by the ER doc!

Link to comment
Share on other sites

I'm free Thursday afternoon. I'm about 15 minutes from there. Quick is ok, because you'll probably be tired. It's always nice to put a face with a name :) You can call me when you are done and I will pop over and we can just grab something there. That way you won't miss the shuttle. And if you are too worn out, no worries.

Link to comment
Share on other sites

How do you pickup daily stuff?

On the concourse level there are medical records and you just give them your patient number and they will copy it all off for you. Make sure you tell them you want everything there. It's in sections.

If you're at the hospital - it's on the first floor - outside of the cafeteria. You will see the sign.

Issie

Link to comment
Share on other sites

...as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing.

This kind of patient experience exists??? I am so jealous right now.

How'd today go?

Link to comment
Share on other sites

...as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing.

This kind of patient experience exists??? I am so jealous right now.

How'd today go?

Libby, I was pretty shocked. I knew they put their stuff online (I always read the day after my appointments) but I didn't know it would be that fast. Sure enough, there it was. I was a "happy" patient. We should all be so lucky!

Link to comment
Share on other sites

Actually easiest day so far. Just had to drop off urine, and holter monitor. So had a day to rest up. Was hoping to look around town, but way to tired. Poor hubby, but he's been a great support.

About 3 today I got a call from Mayo, they have changed my itinerary for tomarrow, guess they want me to see a GI specialist. Not sure why.? So my first appt at 7:45, and my last one starts at 4 pm. YIKEs!

By the way, I was able to get my med records within 5 min of signing request. Now if only can figure them out.

Link to comment
Share on other sites

Hi Again, well not a very good day. Was supposed to have Plasma Catecholamine test first thing this am, but my veins kept collapsing. These are very painful needle sticks as they use an 18 gauge needle, after 45 minutes and five tries, they gave up. Now I have to go to hospital at 7 in the morning, where they will use a Doppler to insert needle in a deep vein. Then back to clinic for the test.

As for GI consult, IgA & IgG high, they said I have Celiac disease. Having endoscopy tomarrow pm. At least getting some answers to why feeling so bad.

Link to comment
Share on other sites

Wow! I am so glad they got you into the GI specialist then since you have Celiac. My friends who have it say they feel a world of difference when they eliminated the gluten. They can always tell when they accidentally get some in their diets. There are so many good celiac products now too. Just remember- you can write off the differences on your taxes as a medical expense since the cost of celiac/gluten free items are higher than general food costs. Good luck with the scope.

Total bummer about the plasma test. Those needles are brutal. Traffic is pretty bad on the 101 at 7am, just so you are prepared. Especially heading back to the clinic from the hospital. Taking side streets is about the same. If you'd like some alternate routes if the freeway is just jampacked, let me know.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...