Mydoggielovesme2 Posted March 26, 2013 Report Share Posted March 26, 2013 Hi All, just a quick update: Mayo is great. Amazing how quick things are happening. Really liked Dr Goodman. He is very quite, and listened very attentively. When I started the day, I was only scheduled to see the Dr, but ended up being there 6 hrs. Had labs, pulmonary, and EMG studies. Pulse ox all night, and 24 hr unine to start tomarrow am. More tests starting at 7:45am, which means carrying around urine jug all day-----yuk. Extremely tired, but so glad to be here. Thank goodness they have a special rm that is dark and filled with reclining chair, so was able to get a nap in between some tests. Today the temp here in Az was 81, and only 25 back home......added perk!! Blessing to All Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted March 26, 2013 Report Share Posted March 26, 2013 yes, Dr. G is great. Quote Link to comment Share on other sites More sharing options...
issie Posted March 26, 2013 Report Share Posted March 26, 2013 Hoping for answers for you. Mayo is a pretty AMAZING place. Issie Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 26, 2013 Report Share Posted March 26, 2013 it was good to see that a recent Mayo publication on POTS addressed the important subset of POTS patients with low aldosterone, low blood volume and high serum levels of Angiotensin II. Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 26, 2013 Report Share Posted March 26, 2013 I really like Dr. Goodman too! Sorry you have to carry the urine around all day. I do love how efficient they are with scheduling things. They try really hard to get everything as close together as they can.Good luck this week! I'll be watching for updates Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 26, 2013 Report Share Posted March 26, 2013 I hear he is a real looker. LOL Quote Link to comment Share on other sites More sharing options...
issie Posted March 26, 2013 Report Share Posted March 26, 2013 I hear he is a real looker. LOL Shhhhh, you're not supposed to tell people thattttt!!! Not BAD though --right girls???? Ha! Ha! Issie Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted March 26, 2013 Report Share Posted March 26, 2013 haha yes, not bad Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 26, 2013 Report Share Posted March 26, 2013 Definitely Dr. Good "on the eyes." Quote Link to comment Share on other sites More sharing options...
cmreber Posted March 27, 2013 Report Share Posted March 27, 2013 I went there last May and also saw Dr. Goodman. Had a wonderful experience and really liked everyone there. LOL azmusiclover, too funny Hope you get some answers mydoggielovesme2! Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 27, 2013 Author Report Share Posted March 27, 2013 Hi Again, well had the autonomic tests today. ARS, RSD and one other not sure what it was called, but had to do with breathing and heart rate. Then had holter monitor put on to wear 24 hr. So glad it was a shorter day, those tests did me in. Came back to RV and slept rest of the day. Some of my labs are coming back, not sure what most of the are, but negative for Lyme and typase syrum ok also. Tomarrow only have to return holter and 24 hr urine. Yea, a day to enjoy Phoenix. Thursday having Plasma Catecholamine test in am the going to the Phoenix Mayo campus for heart test in pm. Thanks for all the well wishes everyone, your support in great and very much appreciated. As for Dr Goodman.....I'll leave that debate for you younger girls. Haha Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 27, 2013 Report Share Posted March 27, 2013 I'm close to the Mayo hospital if you felt up to meeting for dinner or late afternoon snack/beverage. Their cafeteria isn't bad if you didn't want to go off "campus" Maybe some of the other N Phx/AZ girls would be able to join? I can send you my phone number privately if you want to meet up! Quote Link to comment Share on other sites More sharing options...
issie Posted March 27, 2013 Report Share Posted March 27, 2013 Glad things are going well so far for you. It's been a nice week weather wise here for you. Hopefully, your answers will come soon. You do know you can daily pick up your results. That way you can review each day as things come in and then if you have questions ---start a list. Issie Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 27, 2013 Report Share Posted March 27, 2013 About results- this is how awesome they are... I have an online patient account, and as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing. I had a couple of questions about my blood work while I was in the ER and it was answered by the ER doc! Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 27, 2013 Author Report Share Posted March 27, 2013 How do you pickup daily stuff? Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 27, 2013 Author Report Share Posted March 27, 2013 Azmusiclover, test to start around 1:15 on Thursday and last 1--2 1/2 hrs. Maybe after that we could meet. It would have to be quick though, because the last shuttle is at 5 pm I think they said. Let me know what you think. Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 27, 2013 Report Share Posted March 27, 2013 I'm free Thursday afternoon. I'm about 15 minutes from there. Quick is ok, because you'll probably be tired. It's always nice to put a face with a name You can call me when you are done and I will pop over and we can just grab something there. That way you won't miss the shuttle. And if you are too worn out, no worries. Quote Link to comment Share on other sites More sharing options...
issie Posted March 27, 2013 Report Share Posted March 27, 2013 How do you pickup daily stuff? On the concourse level there are medical records and you just give them your patient number and they will copy it all off for you. Make sure you tell them you want everything there. It's in sections. If you're at the hospital - it's on the first floor - outside of the cafeteria. You will see the sign. Issie Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 27, 2013 Author Report Share Posted March 27, 2013 Thank you so much Issie. Quote Link to comment Share on other sites More sharing options...
Libby Posted March 28, 2013 Report Share Posted March 28, 2013 ...as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing.This kind of patient experience exists??? I am so jealous right now. How'd today go? Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 28, 2013 Report Share Posted March 28, 2013 ...as I was waiting in the ER, I was able to check my blood work that they had just drawn and after I was admitted I could read all the doctor's notes (same day) and testing that they were doing.This kind of patient experience exists??? I am so jealous right now. How'd today go?Libby, I was pretty shocked. I knew they put their stuff online (I always read the day after my appointments) but I didn't know it would be that fast. Sure enough, there it was. I was a "happy" patient. We should all be so lucky! Quote Link to comment Share on other sites More sharing options...
NaomiSpellman Posted March 28, 2013 Report Share Posted March 28, 2013 Does Mayo do DNA test to determine how you are likely to tolerate drugs Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 28, 2013 Author Report Share Posted March 28, 2013 Actually easiest day so far. Just had to drop off urine, and holter monitor. So had a day to rest up. Was hoping to look around town, but way to tired. Poor hubby, but he's been a great support. About 3 today I got a call from Mayo, they have changed my itinerary for tomarrow, guess they want me to see a GI specialist. Not sure why.? So my first appt at 7:45, and my last one starts at 4 pm. YIKEs! By the way, I was able to get my med records within 5 min of signing request. Now if only can figure them out. Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted March 29, 2013 Author Report Share Posted March 29, 2013 Hi Again, well not a very good day. Was supposed to have Plasma Catecholamine test first thing this am, but my veins kept collapsing. These are very painful needle sticks as they use an 18 gauge needle, after 45 minutes and five tries, they gave up. Now I have to go to hospital at 7 in the morning, where they will use a Doppler to insert needle in a deep vein. Then back to clinic for the test. As for GI consult, IgA & IgG high, they said I have Celiac disease. Having endoscopy tomarrow pm. At least getting some answers to why feeling so bad. Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 29, 2013 Report Share Posted March 29, 2013 Wow! I am so glad they got you into the GI specialist then since you have Celiac. My friends who have it say they feel a world of difference when they eliminated the gluten. They can always tell when they accidentally get some in their diets. There are so many good celiac products now too. Just remember- you can write off the differences on your taxes as a medical expense since the cost of celiac/gluten free items are higher than general food costs. Good luck with the scope. Total bummer about the plasma test. Those needles are brutal. Traffic is pretty bad on the 101 at 7am, just so you are prepared. Especially heading back to the clinic from the hospital. Taking side streets is about the same. If you'd like some alternate routes if the freeway is just jampacked, let me know. Quote Link to comment Share on other sites More sharing options...
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