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Posted

at once? I take 60mg morning + 60mg afternoon - but not together... that gets the GI track too upset...

Posted

used to take 90 mg a day split in 3 doses (45 + 30 + 15) I'm now down to 1/2 of that. I couldn't tolerate the high doses - GI symptoms, blurred vision, and my resting HR was too low - under 50 bpm after the 45 mg dose.

Alex

Posted

I take 60 mg three times a day... It has taken the elephant off my chest feeling. My doctor finds that interesting, the elephant that is. I already have severe IBS. It doesn't help my GI issues, but I don't have many choices. I do have the option that If I'm going out I can chose to wait and take the does later if it will leave me running to the bathroom. This is something new we are trying. : )

Posted

I used to have excessive salivation (I was drooling like a dog), nasty stomach and intestinal cramps, and my intestinal transit was ....fast. Sue, it definitely made things move...only i didn't need help in that direction.

Alex

Posted

Hmm. I used to have excessive salivation many years ago when I would take magnesium. I finally made the connection and quit the mag. Not sure I would want that symptom again...it made going to sleep a nightmare, with saliva wanting to run out of the mouth all the time!

Edit: I forgot to mention that I am once again trying magnesium and not having the salivation problems. I probably won't be trying the Mestinon due to the above.

Posted

Sue, you won't know until you try it. It's not one of the side effects that lasts too long - none of mestinon's effects last long, that's why people have to take it every 4 hrs or so. Plus, I never took it in the evening or close to bedtime (so you shouldn't worry about its side effects interfering with your sleep) as it's supposed to help with overall energy and the standing heart rate.

Alex

Posted

Maybe it's just me, but I had thought it raised my BP as well as lower the HR. I thought this illness was named POTS because of where this med kept me...on the pot. My doc laughed when I shyly told him. Blush, Blush. : )

Posted

Bella,

I believe it's supposed to increase one's standing BP without interfering with the supine one - it doesn't increase mine though - which is actually a good thing for me. I'm hypotensive - always have been and I'm uncomfortable if my BP is artificially increased by meds, that's why florinef was a total fiasco for me.

Alex

Posted

My doc said no, but I noticed it does. My body couldn't tolerate Florinef either. I had to take it laying down too. Thanks for the info Alex .

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