heathmcev Posted March 12, 2013 Report Posted March 12, 2013 at once? I take 60mg morning + 60mg afternoon - but not together... that gets the GI track too upset... Quote
Guest Alex Posted March 12, 2013 Report Posted March 12, 2013 used to take 90 mg a day split in 3 doses (45 + 30 + 15) I'm now down to 1/2 of that. I couldn't tolerate the high doses - GI symptoms, blurred vision, and my resting HR was too low - under 50 bpm after the 45 mg dose.Alex Quote
corina Posted March 12, 2013 Report Posted March 12, 2013 Rama, before octreotide I was on 120mg 3 times a day. For me it lasts about 4 hours and then it weans. Hope this helps. Quote
ramakentesh Posted March 12, 2013 Author Report Posted March 12, 2013 Yes thanks heaps. Wish I was on octreotide lar! Quote
sue1234 Posted March 12, 2013 Report Posted March 12, 2013 What exactly are the gi symptoms people get? I have severe constipation, and if it makes things move, that would be great for me! Quote
ramakentesh Posted March 12, 2013 Author Report Posted March 12, 2013 I don't get any stomach issues with it. Quote
tinkerbella Posted March 12, 2013 Report Posted March 12, 2013 I take 60 mg three times a day... It has taken the elephant off my chest feeling. My doctor finds that interesting, the elephant that is. I already have severe IBS. It doesn't help my GI issues, but I don't have many choices. I do have the option that If I'm going out I can chose to wait and take the does later if it will leave me running to the bathroom. This is something new we are trying. : ) Quote
Guest Alex Posted March 12, 2013 Report Posted March 12, 2013 I used to have excessive salivation (I was drooling like a dog), nasty stomach and intestinal cramps, and my intestinal transit was ....fast. Sue, it definitely made things move...only i didn't need help in that direction.Alex Quote
sue1234 Posted March 12, 2013 Report Posted March 12, 2013 Hmm. I used to have excessive salivation many years ago when I would take magnesium. I finally made the connection and quit the mag. Not sure I would want that symptom again...it made going to sleep a nightmare, with saliva wanting to run out of the mouth all the time!Edit: I forgot to mention that I am once again trying magnesium and not having the salivation problems. I probably won't be trying the Mestinon due to the above. Quote
Guest Alex Posted March 12, 2013 Report Posted March 12, 2013 Sue, you won't know until you try it. It's not one of the side effects that lasts too long - none of mestinon's effects last long, that's why people have to take it every 4 hrs or so. Plus, I never took it in the evening or close to bedtime (so you shouldn't worry about its side effects interfering with your sleep) as it's supposed to help with overall energy and the standing heart rate.Alex Quote
tinkerbella Posted March 12, 2013 Report Posted March 12, 2013 Maybe it's just me, but I had thought it raised my BP as well as lower the HR. I thought this illness was named POTS because of where this med kept me...on the pot. My doc laughed when I shyly told him. Blush, Blush. : ) Quote
Guest Alex Posted March 12, 2013 Report Posted March 12, 2013 Bella,I believe it's supposed to increase one's standing BP without interfering with the supine one - it doesn't increase mine though - which is actually a good thing for me. I'm hypotensive - always have been and I'm uncomfortable if my BP is artificially increased by meds, that's why florinef was a total fiasco for me.Alex Quote
tinkerbella Posted March 12, 2013 Report Posted March 12, 2013 My doc said no, but I noticed it does. My body couldn't tolerate Florinef either. I had to take it laying down too. Thanks for the info Alex . Quote
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