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AussieOI

How Did Greg Page From The Wiggles Recover From Pots?

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I have googled and looked in this forum and there doesn't seem to be much information on how Greg Page from the Wiggles recovered from POTS.

It would be good to know how he did it !

Does anyone know?

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Honestly, I've only read about how he had to quit the Wiggles due to POTS, I had no idea that he had recovered. Would love to know how too :)

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thanks for the link. For a while he really didn't want to talk about it much, so its great to see this.

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Thanks for posting that article - it was very interesting. I am not really clear on how he improved so dramatically however it's good that he did !

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According to what I have read, he was diagnosed with Orthostatic Intolerance. This is my diagnosis as well. With mine the only autonomic testing that was off was the actual tilt table. According to my autonomic specialist, OI will simply go away or ease up over time for most people as long as there is not an underlying condition. Maybe his symptoms simply eased up on their own? He wrote an autobiography called Now and Then. Maybe he talks about his recovery in that.

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My understanding is that his diagnosis was OI caused by Neurally Mediated Hypotension. The research body in Australia that he was involved with and donated money towards recently made discoveries about the nature of NMH and are trialling new medications for the condition (droxidopa/L-DOPS and SNRIs in some cases).

He told a patient I know that he believes his body was sweating out too much salt and he got a treatment to reduce his hyperhydrosis which he believes along with florinef helped him the most. he is still quite ill though according to the interview about breaking up the Wiggles for good.

But you are quite right, many docs who see patients with many OI type disorders claim there is a 'five year rule' for many.

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Yes I have NMH primarily and have read that most patients are significantly better within 2-5 years. Who knows if it's true!

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