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Sudden Exertion Syndrome Alongside Heat Intolerance?


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Ive posted about this before, but not only do I have extreme heat intolerance, but I have what i have come to call sudden exertion syndrome.

I tell people that when i "suddenly spike my blood pressure" (pick up something heavy, start running from a dead start, etc) I get deathly ill, headache, short of breath, agitated as if I just drank drano. :o
The best way to describe it is as if I was injected with poisoned steroids.

Anyone else have these problems in combination?

My best theory is that two things are happening: the adrenline spike and the extreme autonomic, sympathetic, or central nervous system agitation.

It could be related to ganglionic neuropathy, exposed nerves?

Im curious if anyone has figured out what is the underlying cause of both the conditions and how they manage them, if at all?

Obviously, Im on Klonopin but that only treats the problem, does not correct it.

I move pretty slow considering I used to play tennis tournaments in 95 degree heat. I walk 5 times a week

at a slow pace.

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I'm wondering about this too. My son is dreading another hot summer. When he went outside last summer, his tremors would start and he turned ghostly white. His blood pressure drops like a rocket. It was impossible to go or do anything outside. Wish I could give a helpful answer.

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Has your son been tested for sympathetic anhidrosis? I honestly dont know a lot about it but some peoples nervous system stops giving the signal to sweat and cool off. When he's exposed to extreme heat out of a cool house is he experiencing not sweating, or is it something else?

Ive also heard of something like vasodilation, or constriction of blood vessels near the skin. I wish i knew more about that.

http://www.medlink.com/medlinkcontent.asp

Above is " acute pandysautonomia". This at least SOUNDS like what your son is experiencing or similar

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He is sweating. I will check out your link.

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Spinner I get the exact same thing you are referring to! My specialist just says it is part of the dysautonomia.....it worries me sometimes because my BP can spike really hard and fast sometimes and I worry about strokes....but he said its only if it was prolonged that he would be concerned.....like you i do everything slowly ;)

Bren

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