boymommy3 Posted February 26, 2013 Report Share Posted February 26, 2013 Hi!I am going to see a neurologist tomorrow. I know he's not a POTS specialist. I am in NC and there are none here in the entire state, but maybe it's at least a starting place.I was just curious if anyone can give me some tips about what to expect and if there are specific things I should ask.Thanks! Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted February 26, 2013 Report Share Posted February 26, 2013 You mat have already done this, but in the pinned topics, mightymouse has "frequently asked question", there is sooooo much great info there that may help. Best of luck tomarrow. Let us know how it goes. Quote Link to comment Share on other sites More sharing options...
misstraci Posted February 27, 2013 Report Share Posted February 27, 2013 Sorry I don't/didn't have any good questions but I'd like to know how your appointment went, let us know!! Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted February 28, 2013 Author Report Share Posted February 28, 2013 So I had my appointment with the Neurologist today and it was great! I didn't really find out anything new, but I was just worried that he'd hurry me out and tell me to be on my way.He was so nice and personable and spent a good long while with me. He seemed fairly familiar with POTS so that was nice. He certainly isn't an expert but seemed to know quite a bit. He reiterated to me that my MRI was clear, just as my GP had told me when she got the results. After doing his neuro exam on me in the office he also said that he felt that he could emphatically say that I have no neurological disease that is causing my symptoms, and that they do all seem to be in line with POTS. Some of you may remember from some of my earlier posts that I haven't had TTT done yet because I have been to afraid to go off my BB, so I am not officially dx.He is going to do an EEG on me is a couple of weeks because of the shaking/convulsing thing that so many of us experience, as that did seem to stump him a bit, but he said that he didn't think the EEG would show anything. He said he'd like to do it in the name of thoroughness, which to be honest, I appreciated. He didn't just blow me off and he didn't discount any of my symptoms, but he was also very confident that neurologically I was spot on despite the symptoms, which led him to agree even more with my having POTS.He also said that he could not believe that my Thyroid has nothing to do with any of this. I have dealt with Hyperthyroidism for many years (that is a long story). He want's me to get my endo soon and see what he comes up with. He didn't think it was all of my problem but he was convinced it's playing a part, which I also agree with.In other news....I also had a treadmill stress test done today. I haven't gotten my official report but the FNP that was present said that it all looked good to her other than my high hr on my bb. My cardio had specified for me to do the test on my meds since I was having the exercise issues on the meds anyway. Apparently they normally have you stop them for the test. Their goal was to get me to 180 and keep on there for 10:30. I did get to 180 but only made it 9 something. I started feeling faint so they stopped it. She, too seem familiar with POTS (not as much at the neuro) and said that to her my treadmill indicated that as well. In that I had no other issues going on except the tachy. Of course she did also say, "You could just have anxiety, you would not believe how many women have that." I was thinking or brother....here we go. That is my fear from the cardio because when I told him last week that my GP thought that's what I have, he didn't even acknowledge that I said it. He also mentioned to me that he wondered if I was having anxiety that something was wrong with my heart. I have this King of Hearts monitor on for 3 weeks so we'll see.So, that's my day in a nutshell. No big answers but also some reassurance that my brain is ok! And I really did like the neuro guy so, to me it was good. Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted February 28, 2013 Report Share Posted February 28, 2013 Boymommy, Thank you for letting us know how things went for you today. What a relief for you to have had a good Dr visit. Just having someone not rationalize way the symptoms we have is so refreshing. You sound like you are relieved, and moving in the right direction. Sometimes just to hear something positive, (ie: your MRI) can help so much. Hang in there as you continue your POTS journey! Shona Quote Link to comment Share on other sites More sharing options...
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