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Painful Hands And Feet


Batik

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I overdid it the other week, exercise was mostly the cause I think, and ended up getting bad chest pain on Sunday and being taken to A&E to get checked out. The chest pain was probably costochondritis, which is normal in fibromyalgia (which I have) and which is renowned for doing a good impression of a heart attack. And I expected the hospital trip to knock me out, I have severe ME after all. I've been exhausted since then.

What I didn't expect was for my hands and feet to hurt for the next week solid. Normally I get hand pain when I've been overdoing it with my hands, either by sewing or typing, and it's been diagnosed as RSI. I hadn't done anything of the sort. The accompanying pain in my feet (heels/ankles) made me think about the other symptom I get markedly in my hands and feet, which is when they get freezing cold. So now I'm wondering whether this could be a dysautonomia thing. I want to be able to sew again, ******, but I don't want to make the pain worse.

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Good morning Batik. Has there been a weather change? My son has experienced this, it comes and goes. The post on Neuropthy last week has some good information. The article that Nomia posted was very helpful. The last page gave out many causes of small fiber neruropthy. Hope you start feeling better soon.

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The weather is always changeable in Scotland!

Could you link me to the post or article in question? I don't know a thing about small fibre neuropathy, I'll need to start from scratch.

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On second thoughts, don't worry. I've googled it and it's a completely different type of pain. I'm talking about aching rather than tingling or what have you, and deeper than the surface.

I should mention that I've had hand and foot pain at the same time before, but not for a while, and this is the first time I've wondered if it might be a dysautonomia thing. Whatever's causing it, I should probably rest, use wrist splints and so forth.

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Batik,

I have this too. Doctors disagree as to whether it is a Fibro thing or a dysautonomia thing. I had all sorts of tests with no answers other than it is not caused by nerve damage. Anyway, I have learned to be proactive. Sometimes that helps. I try very hard not to let my hands or feet get cold or damp. (I know, almost impossible right!) I use something called "HotHands" hand warmers on cold or damp days. Deer hunters in our area use them. You are suppose to put them in your gloves to keep your hands warm but I also put them in my socks. If possible stay in and rest. I have tried pain medicine but haven't really found anything that helps. My thoughts and prayers are with you. It is a rainy day here in Georgia so I am inside watching lots of TV and bundling up because of the same pain.

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Have you ever been checked for a collagen defect? It can cause excessive bruising--and if you were on your feet longer than usual, that could potentially cause you plenty of pain. Just curious--I too have had multiple episodes of costocondritis, and I have a genetic cause of collagen problems

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No, I haven't. How else would it show up? I have a cousin with Ehlers Danlos Syndrome, but I'm not hypermobile or anything like that.

I've not been on my feet for longer than usual, and I haven't seen bruising. It's been about ten days now.

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Not everyone is hypermobile. EDS has many forms--as far as I can tell, EDNF has the best information on the various types, outside of medical journal articles. See http://www.ednf.org/index.php?option=com_content&task=view&id=1347&Itemid=88888968

for the basic stuff, and then you can get information there also on each specific type

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Once I get to that specialist we're trying to refer me to, she should be able to investigate for EDS, she's meant to be good like that. It'll take a while, though. I know someone else who's seeing her, who isn't hypermobile, whom she's having investigated for EDS.

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