boymommy3 Posted February 14, 2013 Report Share Posted February 14, 2013 Is there anyone on here who "shares" POTS with a child? I have read that it can run in families.I have POTS and my husband and I believe our 12 year old son may have a form of it, or at least we are cautiously watching him as he's reaching his puberty years.He had a series of illnesses last winter and was sick A LOT. He lost at least 10 lbs. and hardly ever ate, and would daily complain of feeling sick, weak, and like he was going to pass out. He had some weird liver enzymes come back but it never amounted to anything and resolved. He also developed terrible anxiety for no apparent reason, which as a parent is heart breaking to see. Especially when this child was as outgoing as they come prior to all of this. He seems to be predisposed to fainting for what ever reason but until recently I could explain away his fainting spells. However around Christmas time he got up from the couch at my moms and came over to me and said he felt very dizzy. He leaned over on me but I didn't realize he was actually fainting and just moved a little and he hit the floor like a lead balloon. Then it happened again yesterday but he didn't completely black out this time.Anyway, I don't think he really fits the criteria right now (especially the hr increases) but I have seen people on here talk about the fact that after they looked back they saw signs of it early than they realized. Quote Link to comment Share on other sites More sharing options...
issie Posted February 14, 2013 Report Share Posted February 14, 2013 I have POTS my sister has OI and we think my maternal grandmom had POTS. My sis's son - faints and doc thinks that he and his sister have POTS. So, for sure there are autonomic issues in our family. Issie Quote Link to comment Share on other sites More sharing options...
puppylove Posted February 14, 2013 Report Share Posted February 14, 2013 Two of my cousins have POTS. CFS also runs in my family. Quote Link to comment Share on other sites More sharing options...
anna Posted February 14, 2013 Report Share Posted February 14, 2013 Me my dads family and it seems my husband have some form of Autonomic nervous system dysfunction our 3 children are diagnosed with 1 with OI 1 with POTS and 1 with unspecified ANS dysfunction. We do all have Ehlers Danlos syndrome though which does seem to be a major contributing factor in our family. Quote Link to comment Share on other sites More sharing options...
Batik Posted February 14, 2013 Report Share Posted February 14, 2013 My cousin has Ehlers Danlos, and I believe she has POTS. I've never heard the term used, but they were always talking about her tachy episodes. Of course, since she's been unable to stand up for about twenty years (due to leg problems rather than the POTS), that might complicate matters. Quote Link to comment Share on other sites More sharing options...
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