bebe127 Posted February 7, 2013 Report Share Posted February 7, 2013 Any good books that anyone can suggest in dealing with chronic illness, specifically POTS?Thanks! Quote Link to comment Share on other sites More sharing options...
puppylove Posted February 8, 2013 Report Share Posted February 8, 2013 Together We Stand: Riding the Waves of Dysautonomia is a great book. It's packed full of info, a lot of it is for teens and kids with POTS. Quote Link to comment Share on other sites More sharing options...
bebe127 Posted February 8, 2013 Author Report Share Posted February 8, 2013 Thanks puppylove, already have that one Quote Link to comment Share on other sites More sharing options...
Lel Posted March 7, 2013 Report Share Posted March 7, 2013 I'm a fan of If You Have to Wear an Ugly Dress, Learn to Accessorize by Linda McNamara and Karen Kemper. I think if it as a warm blanket on a chilly day (or for us POTSies, a warm blanket for any random cold chill). It's specifically geared toward autoimmune diseases (which I also have), but I think it would be a beneficial read for anyone with a chronic illness. It really helped me begin to deal with the emotional toll and alienation. (My then-boyfriend was convinced that I was a hypochondriac, since the doctors couldn't pinpoint the problem.)http://www.goodreads.com/book/show/12115415-if-you-have-to-wear-an-ugly-dress-learn-to-accessorizeOn my bookcase is a copy of How Can You NOT Laugh at a Time Like This: Reclaim Your Health with Humor, Creativity, and Grit by Carla Ulbrich. I haven't read it yet, so I can't officially vouch for it, but the excerpts I've skimmed look very promising. I've found that when I can give a true laugh, then I can deal with life.http://www.goodreads.com/book/show/10255878-how-can-you-not-laugh-at-a-time-like-this Quote Link to comment Share on other sites More sharing options...
Lel Posted March 7, 2013 Report Share Posted March 7, 2013 The book Coping with Chronic Illness by Wright and Ellis is mentioned in another forum post.http://www.goodreads.com/book/show/6855129-coping-with-chronic-illnessI found the reference. Check out bebe127's post here:http://forums.dinet.org/index.php?/topic/22705-how-do-people-rationalise-the-whole-pots-thing/ Quote Link to comment Share on other sites More sharing options...
misstraci Posted March 14, 2013 Report Share Posted March 14, 2013 They aren't specifically for POTS, more specifically for cancer and other chronic illness but I still suggest Dr Bernie Siegels' books, all of them are great. check him outhttp://berniesiegelmd.com/ Quote Link to comment Share on other sites More sharing options...
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