sue1234 Posted February 5, 2013 Report Share Posted February 5, 2013 I have been standing more in the last few months than I have in the last 7 years! I have been doing things like cooking more(well, cooking period!). In the last few weeks, I have been working at baking gluten-free bread from scratch. It forces me to stand up alot more than my usual, which is really great. But, the problem I eventually get is a feeling like someone is squeezing my chest from the inside. It is like I am "holding" myself up via my upper body muscles instead of my trunk muscles.You know what it would be like if someone was going to through a dodgeball right at your upper abdomen/lower chest, and it made you clench that area? That's what I find myself like when I've hit that brick wall and can't stand up anymore. Any idea why?? I think if I could figure this out, I could probably stand up even more!! Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted February 5, 2013 Report Share Posted February 5, 2013 I suspect it's from Hypoperfusion. Dr peckerman explains this in a talk on cfs. I've had this for 23 years. My only remedy is layung down so my upper body getsenough blood. Tc .. D Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 5, 2013 Author Report Share Posted February 5, 2013 Ugh! So no chance to fix it unless they find a cure! Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted February 5, 2013 Report Share Posted February 5, 2013 Actually, sitting with feet elevated while cooking helps me a tiny bit but not completely. I've only tried spanx bottoms once but theyseemed to help. I unknowingly had a kidney infection that got ugly right after that so I didn't get to try theseagain. I'm going to though. And taking 5 mg Wal-zyr every few hours helps me sometimes. NOTHING works as well for me as laying down flat tho. *****, doesn't it ? Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 5, 2013 Author Report Share Posted February 5, 2013 Yes, it most definitely does! Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 5, 2013 Report Share Posted February 5, 2013 I have a stool in my kitchen that I use for food prep on bad days and to wash dishes (old home with no dishwasher, ugh!). Even though it doesn't allow me to put my feet up, it does help prevent symptoms. I get the chest tightness and pain too. We were just talking about this on another thread. We also had a thread about it a while ago and I think the general concensus was thoracic hypoperfusion like Dizzy said. Quote Link to comment Share on other sites More sharing options...
badhbt Posted February 5, 2013 Report Share Posted February 5, 2013 I don't have an answer to your problem, but I wanted to give you a YIPPEE to making progress. It is nice to hear people make improvements!I find if I do really deep breaths in and stretch my diaphragm and chest wall it helps. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 5, 2013 Author Report Share Posted February 5, 2013 Katy, a stool is a good idea, I just can't sit upright. I either need to be standing(but only for my limit) or sitting somewhat reclined. Sitting upright gives me the same tight chest feeling.Badhbt, diaphragm is exactly where I feel the tightness. It is like it is cramping, but I'm sure it is not really, as I would assume I'd have trouble breathing and I don't. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted February 5, 2013 Report Share Posted February 5, 2013 Doesn't your breathing get shallow when this happens ? Maybe you're not noticing it ? Sitting on stools don't help me either. I also need to recline after eating to get the knotted feeling out of my stomach. Laying down post eating starts an onslaught of digestive gurgling. It's like peristasis won't start untilI lay down. Light meals help. Quote Link to comment Share on other sites More sharing options...
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